Andrew
Senior Member
- Messages
- 2,522
- Location
- Los Angeles, USA
There is something that's been in the back of my mind but I'm not able to do anything about it now.
1. John Chia told me that Lipkin's markers are not sensitive enough for chronic illness, and that he is using a sensitivity that is applies more to acute illness. He also told me that he was at a ME/CFS conference where Lipkin spoke, and asked him from the audience how sensitive his tests are. During the exchange Lipkin asked Chia how sensitive he thought they should be. So, of course, I asked Chia if he told Lipkin his opinion, and said "no." So I strongly urged him to send an email to Lipkin, and Chia said that maybe he would.
2. I read an article by a rep from an Epstein Bar foundation (I don't remember which one) that said pretty much the same thing about tests for chronic illness needing to be more sensitive than what Lipkin is probably using. And in the article she said nothing about having a discussion with him.
Now, if these two people who specialize in ME/CFS think that tests are not sensitive enough, don't you think they should tell Lipkin this. I don't know if either of the two above even followed up on this. And I know from experience that we cannot assume these things automatically get sorted out. So if any of you are in touch with the people above, could you ask them if they contacted Lipkin. And if not, light a fire under them to do it.
1. John Chia told me that Lipkin's markers are not sensitive enough for chronic illness, and that he is using a sensitivity that is applies more to acute illness. He also told me that he was at a ME/CFS conference where Lipkin spoke, and asked him from the audience how sensitive his tests are. During the exchange Lipkin asked Chia how sensitive he thought they should be. So, of course, I asked Chia if he told Lipkin his opinion, and said "no." So I strongly urged him to send an email to Lipkin, and Chia said that maybe he would.
2. I read an article by a rep from an Epstein Bar foundation (I don't remember which one) that said pretty much the same thing about tests for chronic illness needing to be more sensitive than what Lipkin is probably using. And in the article she said nothing about having a discussion with him.
Now, if these two people who specialize in ME/CFS think that tests are not sensitive enough, don't you think they should tell Lipkin this. I don't know if either of the two above even followed up on this. And I know from experience that we cannot assume these things automatically get sorted out. So if any of you are in touch with the people above, could you ask them if they contacted Lipkin. And if not, light a fire under them to do it.