I just read this in Corinne Blandino's excellent piece on Cort's blog:
The foot numbness had started over a year ago but now it was progressing up both legs and I had developed a pressure sensation in my mid-back, similar to being jabbed by a broom handle along with numbness and tingling in the last three fingers of both hands. The latter resulted in my local doc diagnosing me with ‘peripheral neuropathy’ and referring me to the local neurologist who was booked up for three months.
Read more: It’s Official! My ME/CFS is a Pain in the Neck: Corinne’s Visit (#9) to Dr. Peterson (Feb, 2013) http://www.cortjohnson.org/blog/doctor_blogs/its-official-my-mecfs-is-a-pain-in-the-neck-corrines-visit-9-dr-peterson/
This rang bells with me. When I went into a substantial remission after years in bed, I would every few weeks get a sensation in my spine, at the level of my shoulder-blades, as though someone was poking me in the back with a broomhandle. I used to use those exact words to describe the symptom so it was weird to hear them, for the first time ever, written by another patient. The area would feel increasingly inflamed and then I'd have, within 24 hours, a major flare-up (what I interpreted as a new infection, at the time) and would be forced to go to bed for a day or two until the attack gradually wore off over the next week or so.
This 'broomhandle' symptom preceded every single flare-up/infection and I never had the broomhandle thing without it being followed by a flare-up/infection.
Anybody know what that is?
The foot numbness had started over a year ago but now it was progressing up both legs and I had developed a pressure sensation in my mid-back, similar to being jabbed by a broom handle along with numbness and tingling in the last three fingers of both hands. The latter resulted in my local doc diagnosing me with ‘peripheral neuropathy’ and referring me to the local neurologist who was booked up for three months.
Read more: It’s Official! My ME/CFS is a Pain in the Neck: Corinne’s Visit (#9) to Dr. Peterson (Feb, 2013) http://www.cortjohnson.org/blog/doctor_blogs/its-official-my-mecfs-is-a-pain-in-the-neck-corrines-visit-9-dr-peterson/
This rang bells with me. When I went into a substantial remission after years in bed, I would every few weeks get a sensation in my spine, at the level of my shoulder-blades, as though someone was poking me in the back with a broomhandle. I used to use those exact words to describe the symptom so it was weird to hear them, for the first time ever, written by another patient. The area would feel increasingly inflamed and then I'd have, within 24 hours, a major flare-up (what I interpreted as a new infection, at the time) and would be forced to go to bed for a day or two until the attack gradually wore off over the next week or so.
This 'broomhandle' symptom preceded every single flare-up/infection and I never had the broomhandle thing without it being followed by a flare-up/infection.
Anybody know what that is?