Seeking Facebook Activists

[Andrew]

I'd like to start raising some issues with federal handling of CFS, and I'd like to do it on the relevant government pages. But I don't think it would do much if I did it alone. As far as I can see, a single post without responses won't do anything. Are any of you interested in joining me in working out how to do this, and then carrying it out.

 

[Nielk]

I'd like to start raising some issues with federal handling of CFS, and I'd like to do it on the relevant government pages. But I don't think it would do much if I did it alone. As far as I can see, a single post without responses won't do anything. Are any of you interested in joining me in working out how to do this, and then carrying it out.

I'm ready, willing to do whatever you think will get some results.

 

[Nielk]

Am I the only one receptive to this?

 

[Tuha]

i would also join any common effort.

 

[*GG*]

Am I the only one receptive to this?

I hope not, I cannot commit firmly, I work and come rather tired most days and often don't go on Facebook, but I do subscribe to the Forums and am pretty good at voting on something daily, when that occurs.

GG

 

[Andrew]

I've been trying to find another thead here with no luck. Or maybe I saw this on a site. It is a list of facebook pages that are sponsored by DHHS. I'm trying to figure out which one would be best to post on regarding CFS and or CDC. Anyone know?

 

[*GG*]

Hmm, don't think i have seen this.

GG

This is closest thing with Facebook that I could find:

http://forums.phoenixrising.me/show...nings-in-Online-Contests-List-in-post-2/page2

 

[Snow Leopard]

There are also the possibility of "Tweetstorms" http://globalfree.wordpress.com/2010/10/02/tweetstorms/

I have no idea how effective they are though, it is a good idea to wait until one has a good concise message before doing it. (oh and you don't all send the same message, but variations on the idea).

 

[Andrew]

I found this. http://www.hhs.gov/facebook/

Even though I have a facebook account, I don't participate. I don't understand the culture. Can someone point me to a facebook page where a group of people are voicing complaints. The topic doesn't matter.

BTW, despite that fact that I started this thread, I am only able to get to this every few days. CFS is not the only illness I have.

 

[Nielk]

At this site https://www.facebook.com/niaid.nih
if you click "like", you can post on their wall.

The same with this site
https://www.facebook.com/nih.gov