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It comes down to finding a doctor that understands but Dr L is the only one mentioned, he is not a CFS/ME specialist. How does one find a ME/CS specialist in the USA? I have been studying a lot but still no closer to finding a doctor I feel gets it. Now going to try lyme doctor because finally it looks like that maybe what I have been fighting gor 10 years. Once I had an idea it was lyme I reserached sought lyme doctors (another difficult path) and found 3 that I felt I could possible drive to see. All had 6-8 month wait. I asked to be added as a patient to Dr C in Misourri and Dr L in Indiana. I exlcluded the doctor in WI due to 7+ hr one way trip and he also had long wait list.
There are a handful of top ME/CFS docs who also have a broader range of treatments available. Even so, they don't all cover everything. But seeing a top specialist and getting a big chunk of your symptoms under control is an excellent first step. If you need to change specialists later to address other things, you can do that.
If I were in your shoes, I'd look into seeing Drs Klimas/Rey (I think they have a new doc coming online who might not have a patient backlog yet), Dr Enlander, Dr Kogelnik, or Dr deMeirleir. I know I've forgotten some. No doubt other people will chime in with some others.
Of course, if you do have chronic Lyme, then a LLMD would be a good place to start.
Since you have an appt with your PCP tomorrow, I'd suggest taking a full copy of the ME/CFS Primer for Clinical Practioners and show her Section 5:8 Management of Related Conditions to see if you can get some symptomatic treatment for some of the (somewhat) easier to understand symptoms. You can also show her 5:2 Sleep, and 5:3 Pain, if those are problems for you. Don't expect her to read it all though. Frankly, I have a hard time getting mine to read even a paragraph of anything I bring in, but it sometimes helps in getting a referral.