Secretary of Health Sebelius Responds

[Ember]

By Bob Miller on March 3, 2013

We thank Senate Majority Leader Harry Reid for his longtime work and support for the ME/CFS community, and especially for his recent efforts with the Secretary of Health to stress the serious unmet need in the ME/CFS community and the drastic implications of the FDA’s denial of the only medicine in clinical trial for patients.

Secretary of Health Kathleen Sebelius responded to Senator Reid’s inquiries with the letter below....

More: http://www.cortjohnson.org/blog/201...harry-reid-on-chronic-fatigue-syndrome-mecfs/

 

[Jarod]

That was a nice letter from Kathern Sebelius. Even if she means well, it must be hard to initiate change with such a large organization because she just can't micromanage a situation like that.

I found the part about collaboration extramural and intramural research funding interesting. I hope it means the extramural researchers get more funding.