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13 February 2014 / posted on hhs.gov
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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There has been too much freedom of insurance and medical providers in charging whatever they want. This is why medical costs in America are so obscene compared to everywhere with socialized medicine.We need more Freedom in the Health care field, not more gov't meddling, all that does is lead to less competition which only leads to increased cost!
There has been too much freedom of insurance and medical providers in charging whatever they want. This is why medical costs in America are so obscene compared to everywhere with socialized medicine.
I also think it's rather selfish to use "ME/CFS won't get treated anyhow" as an excuse - there are many other people with many other disabling and deadly diseases who will be able to get help now. And personally, I like being able to get treated when I have more mainstream medical issues, or acute ME/CFS issues which require investigation.
You are entitled to your opinion, but not facts. Countries that have less gov't meddling, have lower health care costs, not fudged by the gov't. I believe Singapore has more market based system, and their costs are low, people have the Freedom to make their own medical decisions, what is so wrong with that?
Regarding Obamacare: I live in a conservative area and I hear a lot of "Why should I pay for other peoples health care?" I don't understand this mentality. It took me years to get diagnosed with Hashimoto's and then years for a Fibromyalgia, CFS and Sjogren's diagnosis. Part of the reason was my substandard insurance. I was living in Seattle at the time and costs for insurance had skyrocketed. Meanwhile, I suffered. Why would anyone want that for another person, especially if you have experienced a disabling illness yourself? I now work for the government and have better healthcare. If they raise my health insurance a few dollars a month to pay for others who have no health care, I am more than willing to pay. Why is it so wrong to help eachother?
Regarding Kathleen Sebelius: I don't know what context the tweet was taken from; however, perhaps she should spend more time looking into treating and accurate testing for infectious diseases such as lyme and mycoplasma. If there is no test, it doesn't really matter what my insurance will pay for.
Is it your country that just allowed kids to be euthanized if they want? Now that is progress! Seems like a cop out of trying to make medical gains, just let people kill themselves because we are to inept to find cures for illnesses!
GG
There is no practical way to cure many terminal diseases - such as metastasized cancers and deadly genetic defects. This is despite countries around the world making intensive efforts. While a cure might come eventually, it seems impractical to force anyone to live in intense pain with the knowledge that their disease will kill them in a horrible manner long before a cure can be found.Is it your country that just allowed kids to be euthanized if they want? Now that is progress! Seems like a "cop out" of trying to make medical gains, just let people kill themselves because we are to inept to find cures for illnesses!
Greg, I have a feeling that this is going to be a never ending argument, but I am going to go there anyway.It's not, it's just the gov't is very inefficient at spending these dollars, if you just donated that money to a good org, they could make it go up to 10 times further!
Has your insurance only gone up a few dollars? If so, how much longer do you think this will last? I guess time will tell, perhaps that is why the GOP is letting this law still take effect, to wake up people such as yourself. This law is already costing 3 times as much as sold to the American public, and it's not even fully implemented! I wish we lived in a perfect world, where everybody got the care they needed, but it's not going to happen. Look at all the complaints from our brethren, and my impression is that lots of them wish they could get many of the treatments some of us get, instead of being told it's all in their heads or to exercise (GET).
GG
I think it's a bit more complicated than a "simple" infectious disease and right now , to quote Tom Waits, I'm riding on a crest of a slump ;(, but I think that many new lines of serious research indicate that pathogens and a faulty immune system are the culprit in a subset of PWME.So is everyone here of the belief that ME is an 'infectious disease'? To Quote Sebelius above. Interesting.
So is everyone here of the belief that ME is an 'infectious disease'? To Quote Sebelius above. Interesting.
I looked up and read Sebelius's tweet and your interpretation Firestormm seems right .I just read the tweet from Sebelius as meaning protection from infectious diseases, so that might include vaccination programmes for everyone and might imply affordability. I didn't actually think of it applying to ME or the system of healthcare necessarily. I guess though the triggers for many with ME are believed to be of infectious origin, so as you said, people might relate it to that I suppose.