Ysabelle-S
Highly Vexatious
- Messages
- 524
Very often, before some orthodoxy collapses, it puts up a last big fight. And it can appear to get a lot of airtime and defeating them at that point can sometimes seem like it's impossible. I think the media blitz here is a furious fightback against inevitable defeat. Between PACE and what's coming out internationally, their position is hugely under threat. Patient voices have been ignored. Increasing disability after questionable 'treatments' has been ignored. That is a scandal in itself, because they can't say they weren't warned about the effects of their 'treatments'. The BPS school are desperate to control the narrative.
The biggest issue is the welfare of the children in this particular trial, and the need to get as much information to parents of young ME sufferers. Some parents will be taken in by the BPS crowd, because they trust authority, don't understand the politics of ME, know nothing about the PACE trial sham or the international research, and also probably prefer to believe it's behavioural rather than a serious illness from which their child might not recover.
Beyond that, these 'researchers' will not have careers in this field for much longer. I can't see them being around in ten years, but even five years or less might see them kicked out, or, at the very least, much more marginalised. The science is against them. ME will be solved by researchers outside the UK, and that's as it should be, since that's where most of the good science is happening. I think one of the things that's most infuriating is the way real experts are ignored. They are doing the hard work on solving this, and people with cult beliefs about illness delusion and deconditioning are taking all the bows, while a clueless and unquestioning media helps them on. The UK media is beyond useless, but that should not come as much of a shock to anyone who lives here.
When the time comes, there should be no holding back re: the investigation on what happened to ME sufferers at the hands of psychology and psychiatry. This is a bandwagon that will be looking for other patient groups to target. The wheels need to come off and the wagon dismantled for good. Easier said than done of course. I also think the Science Media Centre needs to be investigated. It has done nothing but mislead on this illness, and has worked contrary to the interests of science. It is now at the centre of a huge medical scandal. Continuing to misrepresent the illness, the patients, and the science is hopefully going to reverberate on them like a boomerang.
The biggest issue is the welfare of the children in this particular trial, and the need to get as much information to parents of young ME sufferers. Some parents will be taken in by the BPS crowd, because they trust authority, don't understand the politics of ME, know nothing about the PACE trial sham or the international research, and also probably prefer to believe it's behavioural rather than a serious illness from which their child might not recover.
Beyond that, these 'researchers' will not have careers in this field for much longer. I can't see them being around in ten years, but even five years or less might see them kicked out, or, at the very least, much more marginalised. The science is against them. ME will be solved by researchers outside the UK, and that's as it should be, since that's where most of the good science is happening. I think one of the things that's most infuriating is the way real experts are ignored. They are doing the hard work on solving this, and people with cult beliefs about illness delusion and deconditioning are taking all the bows, while a clueless and unquestioning media helps them on. The UK media is beyond useless, but that should not come as much of a shock to anyone who lives here.
When the time comes, there should be no holding back re: the investigation on what happened to ME sufferers at the hands of psychology and psychiatry. This is a bandwagon that will be looking for other patient groups to target. The wheels need to come off and the wagon dismantled for good. Easier said than done of course. I also think the Science Media Centre needs to be investigated. It has done nothing but mislead on this illness, and has worked contrary to the interests of science. It is now at the centre of a huge medical scandal. Continuing to misrepresent the illness, the patients, and the science is hopefully going to reverberate on them like a boomerang.
