fred
The game is afoot
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A champoin/figure head could surely be Professor Malclom Hooper? He has certainly earned his spurs for the ME Community and he a worty advocate who, if he is not snowed under, might act as figurehead.
Can anyone think of a better person.
C,G,
I would suggest Prof Hooper too. Perhaps he may be able write to the BMJ editor and the incoming BMA President directly. I dare say either he or Margaret Williams would be able to write an eloquent summary of Parvo's analysis - but perhaps one of us may have to do that in order to speed the process.
@Julius - thanks for your compliment - and I have tried to log the material in my head but it is simply not sticking :headache: If someone else is able to write a summary, however, I would be able to proof read, check continuity/grammar/spelling/etc.
Does anyone on this site know Prof Hooper or have any past communication with him?
I fear that the 'main' ME charities would not take up this cause on our behalf - but I would be pleased to be proved wrong. I am sure Invest in ME would wish to help - given the time and resources - but would ME Research UK, given that their own XMRV study in Sweden is not yet published?
Another (perhaps rhetorical) question: would the BMJ/BMA take more notice of a medical professional, perhaps one of their own membership, than a group of patients making a formal complaint? It's not that I am suggesting we don't write, if we wish, but only that we may need more than just Prof Hooper to lodge a formal complaint. Do we know any other UK medics who might take up the cause?
I note that the BMA has an international membership and wonder, therefore, if they would take note of complaints written by non-UK doctors. Would ESME also be a potential target group (noting that Dr Kerr is now an honorary member)? And what about the Irish ME Trust?