Just about the only 'treatment' available from the NHS in the UK is from the 'Fatigue Clinics' set up in various parts of the country. I've never bothered with them as they only offer psychological treatments, but a few months ago I asked my GP to refer me to my local one as I thought that if XMRV pans out, they might eventually offer testing and it might be a good idea to be one of their patients.
I had an appointment for last Wednesday, but I'm too ill to get out of bed so couldn't go. When I emailed cancelling the appointment I asked what they do for people who are housebound and can't get to the clinic. No reply.
I've just got a letter with a new appointment - for January 2011!
How can the NHS claim that they are doing anything at all for people with ME?
Jenny
I had an appointment for last Wednesday, but I'm too ill to get out of bed so couldn't go. When I emailed cancelling the appointment I asked what they do for people who are housebound and can't get to the clinic. No reply.
I've just got a letter with a new appointment - for January 2011!
How can the NHS claim that they are doing anything at all for people with ME?
Jenny