I will press matters about paypal and get back to you.
Thanks, Belive - that would great.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I will press matters about paypal and get back to you.
English version:
Do you want to be a part of making a medical breakthrough? Millions of people suffer from the disease ME, but today there are no medications to treat them. Scientists at Haukeland Hospital in Bergen have found that a drug might make more of them healthy. It was so startling that it made international headlines in BBC, Der Spiegel, and ABC News. If the findings verified, thousands of patients worldwide have a healthier life.
Scientists at Haukeland need only one study to be able to find out if this is the breakthrough you have been waiting for. 140 ME sufferers have to try out the medication in a research project. It cost 7 million. However, the public authorities have refused to grant money.
Togheter. A contribution each. But we have little time. Only 90 days, and they pass fast.
140 patients. 7 million. 90 days.
We can do it. MEandYou.
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Hi Maria and welcome. Why only 90 days to raise these funds?
Hi Maria,
So i would try to contact the leaders of ME organisations, web sites/ facebook pages, forums and asked them to make the call for this initiative and to send an email to their members. Some will refuse to make a call because they say that they dont want to ask money from patients but maybe at least they will post about on their web sites. Also it´s good if you will prepare a poster/template about this action because some leaders are too busy to prepare something.
Good luck
I do not know - but what I do now is that I am happy for all the donations we got, all the people that support, all the people who joins and becomes a part of MEandYou.I just made a little donation, not sure what it will add up to in your currency?
GG
Maria is writing that article; I expect she's pretty busy but will get it to us as soon as she can.Maria, I welcome updates! And still don't see a piece about this important project on the Home page? Chris