Ringing in ears

Tristen

Tristen

Senior Member
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638
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Northern Ca. USA
fla said:
Tinnitus has many causes and is known to be linked with poor blood flow and with inflammation. PWME have poor blood flow and are in a constant state of inflammation so tinnitus is not a surprising symptom for us. I may try going without my Omega 3 fish oil supplement for a short while when I finish my bottle of pills to see if the volume is affected. I can save some money and observe if I get the same effect on tinnitus as dannybex has or this. The fish oil is suggested by my neurologist for cognitive function so I wouldn't want to quit it permanently.
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Exactly what it is. I've had other types of Tinnitus over the years from different kinds of trauma (loud sounds), and toxicities (aspirin), and this ME related Tinnitus is not at all the same thing...it's disease related and not at all "normal".
 
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runner64

Messages
49
Gosh, I have had it for 16 months when I got my first CFS symptom and now have many. I just started antibiotic therapy a few days back so we'll see. I am on no other meds. I won't take any but pop the occasional bendryl or gravol to lengthen the worse shortest non refreshing sleep I've ever had. The tinnitis is totally neuro from this. Whooshing like a conch shell up to your ear, screeching, tv high pitch sound, Bagpipe long note sound. All layerd 24/7. Unreal. Some of you guys had it 10 years. Sorry...........and ho no..............man.
 
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niall

Senior Member
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100
Location
Florida
meadowlark said:
Does anyone else have a 24/7 ringing in the ears? (At times it is more of a roar, and at its worst, a whine.) For me, this is very pronounced during periods when my blood pressure is at its highest (180s), but since I developed unpredictable blood pressure (right now it's completely normal), it has always been present. Often, I think it will drive me insane--white noise at its worst.

Am I nuts?
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I have had a pulsating sound in my ears for this past year. This is a new symptom as I did not have it from 2004 when I first developed CFS until last year when it began. Dr. Klimas told me that it is "neuro-inflammation"
 
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runner64

Messages
49
Okay so it's inflammation, neuro inflammation. I'm glad to get educated here from all of you. Now that makes sense. Because, my brain literally feels fried. This can't be good for the brain that's for sure.
 
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philpot

Messages
48
Location
UK
I have had background noise for about 5 years. Mine tends to be affected more by significant colds, rather than anything else, in that if there is any significant change it normally happens after/during a significant cold. However, if someone offered me the option to have only noise and in return they would remove all my other symptons then I would gladly take it. :) Regards.
 
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pemone

Senior Member
Messages
448
I also have the 24x7 solid high frequency tone in my ears, and this all started for the first time in my life when I came down with the CFS symptoms, about five months ago. I also wonder if it is lower blood flow to the brain, or inflammation.
 
Little Bluestem

Little Bluestem

All Good Things Must Come to an End
Messages
4,930
I developed tinnitus about 10 years into my ME. It is multiple tones, usually no more than moderately loud. It gets louder with allergies or PEM.

I find that ginkgo biloba reduces the volume. 40 mg three times/days is better than 60 mg twice/day for me. I am now taking 30 mg four times/day, but don’t notice any difference.

Very rarely, tinnitus is caused by a tumor in the brain. It is a good idea to see an ear/nose/throat specialist to get it checked out.
 
Jammy88

Jammy88

Senior Member
Messages
163
Location
Italy
Hi,
since my symptoms started I've always had tinnitus. I can't get rid of it, although it gets a bit better after taking Vitamin C or other supplements. In my case, I'm pretty sure it's neuro-viral related.

Cheers
 
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physicsstudent13

Senior Member
Messages
611
Location
US
hearing loss is an emergency and you should go to the ER. tinnitus according to an ENT means your ear cells are DYING and you should go see an ENT.
I started taking 80mg a day of prednisone and I've regained some hearing. I kind of feel like I should treat the hearing loss, because I'm handicapped and won't be able to have an academic career now
 
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Sushi

Sushi

Moderation Resource Albuquerque
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Albuquerque
physicsstudent13 said:
hearing loss is an emergency and you should go to the ER. tinnitus according to an ENT means your ear cells are DYING and you should go see an ENT.
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I'm not sure who you are addressing since no one has posted in this thread for 6 months, but these are individual health concerns that need to be evaluated with your doctor--there is no general recommendation like
hearing loss is an emergency and you should go to the ER.
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Sushi
 
Snowdrop

Snowdrop

Rebel without a biscuit
Messages
2,933
I've had tinnitus for nearly half a century. It hasn't been accompanied by hearing loss.
Sometimes I have trouble processing what I'm hearing but I can hear just fine.
In fact I can hear things others can't.
 
Jammy88

Jammy88

Senior Member
Messages
163
Location
Italy
physicsstudent13 said:
hearing loss is an emergency and you should go to the ER. tinnitus according to an ENT means your ear cells are DYING and you should go see an ENT.
I started taking 80mg a day of prednisone and I've regained some hearing.
Does anything else work????
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Melatonin (3-5 g before bedtime) works good, easing tinnitus symptoms and sometimes resolving them. No need to take prednisone, which is a quite dangerous drug - if taken for a long time.

Best
 
Jammy88

Jammy88

Senior Member
Messages
163
Location
Italy
Just giving a brief update: tinnitus was a big issue in the first months after disease onset.
It was accompanied by (Sometimes severe) dysautonomia symptoms, thus linked to poor blood flow. Neuroinflammation was found after CSF analysis in my case.
Supplements and vitamins have been working good, and now my tinnitus is less severe. Vitamin C and Melatonin were the most beneficial ones, but I've been taking a lot of Vit. B complex, too.
 
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physicsstudent13

Senior Member
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611
Location
US
I seem to have poor blood flow to the right ear and don't know what I should do. The ENT surgeon professor told me that the standard of care is steroids. So I started steroid tablets of prednisone
 
Jammy88

Jammy88

Senior Member
Messages
163
Location
Italy
physicsstudent13 said:
I seem to have poor blood flow to the right ear and don't know what I should do. The ENT surgeon professor told me that the standard of care is steroids. So I started steroid tablets of prednisone
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@physicsstudent13 , I see. It is true that standard of care is steroids, however they might be harmful in the long run. That's why you might want to add supplements and vitamins to your diet. I believe you'll benefit from taking the right ones.
 
Jammy88

Jammy88

Senior Member
Messages
163
Location
Italy
@physicsstudent13
Also, gingko biloba is a supplement commonly used to increase blood flow. It can help to treat vertigo and similar symptoms. If your tinnitus is blood flow-related, you might wanna try it.
 
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