Said that I didn't find this thread earlier.
Is it likely that this could be related to CFS/ME? Seems unlikely given the length of time I've had it. Could it be fibromyalgia? Would be very grateful for your thoughts/suggestions.
It isn't a cardinal symptom to neither of them, but I think it belongs to the collection of possible symptoms caused by autoimmune diseases and chronic infections.
There is a term in the MS world for this kind of symptom: MS-Hug
It mainly occurs at night, not every night, but is happening more often. The pain occurs when I lie on my side (either side) and wakes me up. When I roll off my side the pain goes.
Interesting, I had quite the opposite behavior. But I can't sleep on my side, so I've to roll off.
Is the pain caused/increased by any kind of pressure, e.g. through your fist or any other kind of item, against the sides of your rib cage? Or is it better/same if you press your hands against your rib cage.
Sometimes it feels like a band around my lower ribs.
Oh yes, I know. But is it the only kind of band, are there any others at the higher level of your rib cage?
How long does this process take?
Did you have problems to breathe correctly in these phases, mostly breathing out is too short and breathing in too long?
Just to say, I'm equipped with these symptoms 9 years now and have no cure for these symptoms, some things to relieve this:
- Vitamin D
- partly magnesium (just a bit for a short time)
- Aciclovir (only for a short time)
- Gabapentin (recommended for MS-Hug, never tried it)
- Did you tried blood-letting?, it helps, but relapses very quickly.
- Sauna (only a short time)
- deep breathing (only a short time)
IMHO, I think MS-Hug + Allodynia relates to inflammation (and I think also to blood congestion) exactly because vitamin D and selenmethionine influence this process.
I've tried GcMAF (an immune supplement), and it sometimes destroyed these symptoms most completely for a while, but is also unpredictable and worsening the situation in other directions.
Hi @Fogbound i have had this intermittently over the years at one point I was convinced it was down to my bra being too tight as it was in a band around my ribs but it turned out to be Costochondritis. I don’t have the symptom at the moment but it tends to just start again for no apparent reason.
Sounds like Allodynia
to me. The interesting part of it is that slight pressure worsens the situation more than hard pressure.