This Poll is restarted from the previous poll on this subject:
http://www.forums.aboutmecfs.org/sh...Culture-Poll-for-ACTIVE-and-LATENT-Infections
I don't really understand why it's restarted, and I don't really get the details of what's required here, so I hope this is OK - just doing as I'm asked...
Here are the original instructions...
This poll is for people who have taken BOTH the PCR and Culture tests for XMRV from VIPdx.
We'll try and chart whether illness level effects ones potential for testing positive; i.e. will severely ill patients be more likely to test positive than moderately ill patients? To get a grasp on that this poll will assess illness level relative to disability on three levels; severely ill, moderate to severe, mild to moderate. Disability levels aren't perfect but they're a start. (Unfortunately because the poll is restricted to 10 questions, we can't assess how people with 'mild' ME/CFS fared).
The Disability scale is from 'The Doctor's Guide to Chronic Fatigue Syndrome', by David S Bell, pages 122-123.
These polls are completely private; neither I nor anyone else can determine how anyone voted. To take the poll simply determine your scale of disability and then use it to answer the poll question.
Dr. BELL'S CFS DISABILITY SCALE
Healthy
MILD
MILD TO MODERATE
MODERATE TO SEVERE
SEVERE
http://www.forums.aboutmecfs.org/sh...Culture-Poll-for-ACTIVE-and-LATENT-Infections
I don't really understand why it's restarted, and I don't really get the details of what's required here, so I hope this is OK - just doing as I'm asked...
Here are the original instructions...
This poll is for people who have taken BOTH the PCR and Culture tests for XMRV from VIPdx.
- The PCR test looks for an active infection: XMRV is in the bloodstream looking for new cells to infect.
- The Culture test looks for a latent infection: XMRV is present in the cells but not in the bloodstream.
We'll try and chart whether illness level effects ones potential for testing positive; i.e. will severely ill patients be more likely to test positive than moderately ill patients? To get a grasp on that this poll will assess illness level relative to disability on three levels; severely ill, moderate to severe, mild to moderate. Disability levels aren't perfect but they're a start. (Unfortunately because the poll is restricted to 10 questions, we can't assess how people with 'mild' ME/CFS fared).
The Disability scale is from 'The Doctor's Guide to Chronic Fatigue Syndrome', by David S Bell, pages 122-123.
These polls are completely private; neither I nor anyone else can determine how anyone voted. To take the poll simply determine your scale of disability and then use it to answer the poll question.
Dr. BELL'S CFS DISABILITY SCALE
Healthy
- 100 = No symptoms at rest. No symptoms with exercise; normal overall
activity level; able to work full-time without difficulty.
MILD
- 90 = No symptoms at rest; mild symptoms with activity; normal overall
activity level; able to work full-time without difficulty. - 80 = Mild symptoms at rest, symptoms worsened by exertion; minimal
activity restriction noted for activities requiring exertion only; able
to work full-time with difficulty in jobs requiring exertion.
MILD TO MODERATE
- 70 = Mild symptoms at rest; some daily activity limitation clearly noted.
Overall functioning close to 90% of expected except for activities
requiring exertion. Able to work full-time with difficulty. - 60 = Mild to moderate symptoms at rest; daily activity limitation clearly
noted. Overall functioning 70%-90%. Unable to work full-time in
jobs requiring physical labor, but able to work full-time in light
activities if hours flexible.
MODERATE TO SEVERE
- 50 = Moderate symptoms at rest; moderate to severe symptoms with
exercise or activity; overall activity level reduced to 70% of
expected. Unable to perform strenuous duties, but able to perform
light duty or desk work 4-5 hours a day, but requires rest periods. - 40 = Moderate symptoms at rest. Moderate to severe symptoms with
exercise or activity; overall activity level reduced to 50%-70% of
expected. Not confined to house. Unable to perform strenuous
duties; able to perform light duty or desk work 3-4 hours a day, but
requires rest periods. - 30 = Moderate to severe symptoms at rest. Severe symptoms with any
exercise; overall activity level reduced to 50% of expected. Usually
confined to house. Unable to perform any strenuous tasks. Able to
perform desk work 2-3 hours a day, but requires rest periods.
SEVERE
- 20 = Moderate to severe symptoms at rest. Severe symptoms with any
exercise; overall activity level reduced to 30%-50% of expected.
Unable to leave house except rarely; confined to bed most of day;
unable to concentrate for more than 1 hour a day. - 10 = Severe symptoms at rest; bedridden the majority of the time.
No travel outside of the house. Marked cognitive symptoms preventing
concentration. - 0 = Severe symptoms on a continuous basis; bedridden constantly;
unable to care for self.