Patient in training
I finally spoke with her and my results showed Chronic Epstein Barr along with HH6.
My Natural Killer cells are below normal.
So Dr Klimas has recommended a drug called Imunovir which is great for cells and also viruses.
Goggle it and see the list for what it does and targets.
It was a great phone call.I feel vindicated from all those MD's who didn't want to do blood work,who didn't want to know or believe that it exsists.
I'll keep you posted on how this treatment goes.
Alice, it's great that you have managed to see Dr Klimas. Can I ask why she chose Imunovir over Valcyte? (I am reviewing the Kogelnik article on Valcyte in the forum's library at the moment)
I am also from Canada and I am shocked by the lack of treatment over here. I will ask my rheumy to please ask the MSP (medical service plan) to fund my care in the US because nobody knows here what CFS is and how debilitating is. I have been turned down for a consult by an infectious disease as "they don't treat CFS" . The rheumy, most prominent rheumy in town "doesn't treat CFS". The HHV-6 and EBV tests that I requested, the titers, never came out as tiiter, but came out as positive IgG- totally useless. What am I supposed to do? It's not good enough. I am ready to go to the media if need be.
A second question on the side, did you go see Dr Bell in Toronto? We didn't get any report from that and if you went or know someone that did, would appreciate an answer in the appropriate thread! thanks, Kati