UPDATED LIST:
(1.) Initially Motivated by Personal Experience:
Martin Lerner
- Contracted ME/CFS himself
Leonard Jason
- Contracted it himself
Fred Friedberg
- Contracted it himself
Sarah Myhill
- Contracted it herself
Byron Hyde
- His daughter contracted it
Lucinda Bateman
- Her sister contracted it (and later Non-Hodgkin's lymphoma, from which she died)
John Chia
- His son contracted it (aged 14)
Kenneth Friedman
- His daughter contracted it (aged 17)
Kenny de Meirleir
- His daughter contracted it
Shiela Bastien
- Her son contracted it
Derek Enlander
- A childhood friend contracted it & asked him to help
Rich Van Konynenburg
- A friend contracted it & he tried to help
(2.) Initially Motivated by Clinical Experience
Nancy Klimas (sporadic cases at University of Miami (immunology) clinic)
Tony Komaroff (sporadic cases at Harvard-affiliated hospital (general med) clinic, starting in 1977)
Jose Montoya (sporadic cases at Stanford (infectious diseases) clinic)
David Bell (Lyndonville outbreak)
Dan Petersen (Incline Village outbreak)
Paul Chaney (Incline Village outbreak)
(3.) Persuaded to Get Involved by Another Researcher
Ila Singh (Lucinda Bateman)
Alan Light (Lucinda Bateman)
Kathleen Light (Lucinda Bateman)
Thanks for all of the contributions. As they've come in, I've tried to add those individuals with an ongoing role in the research debate. I haven't added researchers with periodic involvement via specific projects related to their own labs' interests/specialities (eg Levi; Gallo). I haven't added clinicians unless their work has impacted on the research debate. Researchers who haven't appeared interested in a plausible biological basis of the disease have also been excluded.
Whether or not these inclusion/exclusion criteria have been perfect, the intent has been to focus on what's initiated the involvement of those who have contributed to constructive research...
*****
Does anyone know about:
Dr Lapp?
Dr Natelson?
Dr Kogelnik (did he have any interest being recruited by Dr Montoya?)
Dr Vernon (does her brother have it?)
Dr Kerr?
Byron Hyde implied to me he has a sort of post-polio syndrome.
Can anyone comment on this?