Persimmon
Senior Member
- Messages
- 135
From what I've read, each of the following ME/CFS researchers became involved as a direct consequence of personal experience. Maybe the list is incomplete?
Martin Lerner
- Contracted ME/CFS himself
Leonard Jason
- Contracted it himself
Fred Friedberg
- Contracted it himself
Byron Hyde
- His daughter contracted it
Lucinda Bateman
- Her sister contracted what appeared to be ME/CFS (was it?)
John Chia
- His son contracted it (aged 14)
Kenneth Friedman
- His daughter contracted it (aged 17)
It's perhaps not coincidental that this list includes some of the most important and the most outspoken of ME/CFS researchers.
I suspect that for most diseases, the proportion of researchers motivated by personal experience would be far lower.
Martin Lerner
- Contracted ME/CFS himself
Leonard Jason
- Contracted it himself
Fred Friedberg
- Contracted it himself
Byron Hyde
- His daughter contracted it
Lucinda Bateman
- Her sister contracted what appeared to be ME/CFS (was it?)
John Chia
- His son contracted it (aged 14)
Kenneth Friedman
- His daughter contracted it (aged 17)
It's perhaps not coincidental that this list includes some of the most important and the most outspoken of ME/CFS researchers.
I suspect that for most diseases, the proportion of researchers motivated by personal experience would be far lower.