For those that can't watch or listen (from my Twitter!):
-Difficult last year due to COVID-19
-However used archived blood to do studies, especially with Mark Davis.
-Ability study; has helped Whitney, preliminary study with Hector Bonilla and Laurel Crosby seems to help a lot of patients.
1/#
2/#
-However was not a double-blind study, has multiple limitations. Need to do double-blind study. Hard to get funding, however are working on this. Hope to have over 100 patients for this.
-Wants to do bigger molecular analysis similar to Severely ill patient study.
3#
-Severely ill Patient Study not published because still analysing huge amount of data. Limited by amount of personnel.
-Data being helpful to a lot of other researchers.
-Study helped narrow the focus.
-Including biochemistry + genetics never looked at before in patients.
4#
-Ron excited by this as could give new insights and treatments to try.
-Hope to get study started via donations.
-Red Blood cell deformability may still be important, prior discrepancies between experiments may be down to blood draw timing and sample processing etc.
5#
-Thinks there probably is a deformability issue.
-Recent study with COVID-19 also found deformability difference. In that case, it's possible COVID-19 patients may have MECFS, or virus causes deformabilty change-don't know yet.
6#
-During pandemic had virtual meetings, researchers participating in meetings too.
-4 grants written in that time.
-Data analysis also continued.
-Has set up to move much more rapidly in doing experimentation, initiated new things, will talk about at later time.
7#/END
-Up and running now, pretty much full capacity.
-Grateful to patients now coming in and giving fresh blood samples.
-No problems in laboratory, Stanford has done a great job and also the county at keeping virus suppressed.
-Thanks from Ron.
Hope that helps. There is much more detail on the video.
B
