Sasha, the presentations are recorded and archived on the Association's website. The slides are usually up within a day or so, and the full presentation follows a day or two later. Check here for updates: http://cfids.org/webinar/series2010.asp
Thanks, Jennie - will it go onto your YouTube channel as well as be on mediaplayer?
BTW, I was recently diagnosed with orthostatic intolerance despite never feeling dizzy or lightheaded when standing. I only suspected I had it because I find standing still more tiring than walking. I started a thread
recommending people who get tired but not dizzy standing to check themselves out using an easy test. Several people with the same symptom profile did so and now believe they have OI.
I've seen an estimate (can't remember where, sorry!) that about 2/3 people with ME have OI. I don't know what proportion of those with OI don't experience dizziness/lightheadedness but I am concerned that those who don't won't recognise themselves in the way that OI is almost always billed - in terms of dizziness/lightheadedness on standing. The CAA blurb about this presentation reads: "It has long been established that many people with CFS experience symptoms like light-headedness associated with upright posture, broadly called orthostatic intolerance." Would the CAA consider changing this to something like "Many people with CFS find standing still for even short periods of time extremely tiring and sometimes feel light-headed or dizzy when they do so" or something like that, if Dr Medow was happy with that?
I'd be curious if Dr Medows knows the prevalence of not feeling dizzy on standing in people with OI, particularly in CFS.
Thanks again - I'm really pleased that the CAA has put on a talk on such an interesting and important topic and I'm looking forward to seeing it on YouTube (if it goes there!.
ETA: Getting a diagnosis of OI is extremely important because it's one of the symptoms of CFS that's treatable.