Hi
@Wayne....thanks. My outbreaks were just before the anti-virals were commonly used and I never had prednisone, but I did take large amounts of lysine...kept it in my system 24 hrs./day.
I don't believe I've ever been more miserable in my life. Most doctors couldn't identify it, but my neurologist did immediately. Trust me when I tell you that things were so bad that for some odd reason I ended up on a mental ward for about a week or so. No, it wasn't the worst thing that ever happened to me and kept me moving and attending classes. This is how it plays with the nervous system and leaves you with the most incredible panic disorder ever. My outbreaks were in different places along my spinal cord, not my face, eyes, etc., thank goodness. That is one underestimated disease and left me pretty well bedridden for a year or so. Just one wave after the other.
Even my husband was rather impressed with this and the misery it caused. We both went for the vaccine (although no doctor along the way suggested it afterwards). Finally a new one came out...and it's something like 95 per cent accurate. We got that one just before COVID hit. I'll tell you that it was years before I could even hear that word before having an anxiety attack and hope to never have it again.
FYI, it's more common and worse as we age. The first attack, years earlier when I was about 30, wasn't bad...the later ones were unbearable. I was alone, Rod was traveling during that time and he finally quit work to help me (he was past retirement age anyway & continued to do consulting). I did listen to the ozone therapy part of youtube and thank you for thinking of me. I still have neuralgias from it, and was allergic to everything. My hair was washed with Ivory Soap only...when I wasn't too weak. hope you're doing well. Yours, Lenora
