Reoccuring and stubborn gastritis - what can i do

[Blazer95]

So, since the beginning of my ME/CFS I had increasing gastro symptoms of wich one is constant bad reflux and gastritis. i got multiple gastroscopys and they all revealed chronic inflammation of the stomach and - sometimes - inflammation of esophagus.

the only way this has been managable over the years is constant pantoprazole (PPI) intake. I was able to reduce to 20mg wich seemed like a big win for me. I have been stable a few months on 20mg before i decided to try a step deeper.

So i went for famotidin wich is generally said to be a bit milder and doesnt have the heavy side effects of PPIs like mineral loss etc. I was on about 30-40mg famotidin daily and at first it seemed to work out.

Recently i consumed a cold beverage on empty stomach, wich was like 3 weeks ago and since then i cant seem to get rid of my gastritis again. I am on pantoprazole 20mg again and sometimes additionally 10-20mg famotidin wich is crazy.

are there ways to heal my stomach any sooner? I'm trying bone broth and camomille teas atm as i cant eat anyway.
do others have this too?

cheers

 

[ilivewithcfs]

Here's how I manage my chronic gastritis.
I do courses of pantoprazole and bismuth regularly, I also try to stick to a diet as much as I can. These things improved my situation, although I still feel pain in the stomach every now and then.
I do gastroscopy every year for my peace of mind.

 

[hapl808]

Mine is awful - but weirdly only occurs after exertion. Took me years to understand. I have respiratory and MCAS issues, so my constant hacking cough was mostly connected to that, but I think it's actually partially a reflux cough. So I'd wake up in the middle of the night with a hacking cough.

Unfortunately, for me 'exertion' includes working on the computer, preparing food, talking on the phone, etc. Basically, it's almost unavoidable since I live alone and have no support system.

Things that have helped me:

• Extremely careful diet - mostly boiled chicken and vegetables, teas, no processed foods, etc.
• No alcohol, no caffeine later in the day.
• Slippery elm, marshmallow, fenugreek.
• Harder to understand - anti-pathogen stuff like allicin, monolaurin, andrographis all help, but also ironically are quite hard on the stomach. Never have found a perfect balance.
• Careful use of probiotics (sometimes changes what helps).
• Avoiding triggers, which is tough - raw vegetables, vinegar, soy sauce, beverages right after meals, etc.

I've never done PPIs as it just seemed like a temporary solution - and too many family members did poorly on them. I tried famotidine and found it helped temporarily and then maybe made things worse. Also tried cromolyn, ketotifen, etc - no major help there. Maybe a bit of help from enzymes.

 

[linusbert]

very important is vitamin C, its required for the lining of the stomach.

i had recently a episode after potatoe day, maybe the solanin gave my guts the better. i kinda could eat normally but after drinking plain water my stomach would feel like pumped up and full and then it started slightly burning all over the stomach area. which is bad as i drank probably to less then.
i noticed that when i took like 1g of sodium ascorbate with water the problems got better within minutes. not sure if its the C or just the sodium. but glad it helped. it also would get better after eating.
i also have the theory that my glas water bottles were polluted by the glued labels. the whole bottles where glue-y. maybe that contributed to the problem.

i also have that chronic gastritis. i am still wondering what exactly it is. i just know a few foods can make it bad pretty fast. some berry and wine fruits and tomatoes or processed tomatoes from sauce. also things which should make it bad like pepper, or vinegar has no effect or makes it better?! ... other things which shouldnt make a problem. i am pretty sure its a isolated allergic histamin reaction in the stomach to certain things.
i had my pantozol course behind me, did nothing. ranitidin back then worked much better, but what did fix it sofar that i at least didnt feel it was to not eat those things.

EDIT: some source regarding vitamin C and gastritis connection:
https://pubmed.ncbi.nlm.nih.gov/22543844/

https://www.sciencedirect.com/science/article/abs/pii/0016508589900711

not sure what form is the best, if plain ascorbic acid is best because it directly works in the stomach or sodium ascorbate. probably liposomal does not work directly, but might be working from "within" a little later.

 

[Treeman]

I kept a food diary and discovered what causes the problem and cut them out. It's much better but can still be occasionally set off. Bending over after eating, alcohol and not being strict with my diet. Good luck.

 

[Byles]

You might try inactive tumeric (I use Jarrow tumeric 95). You want to try inactive so it remains in the gut and doesn't get absorbed. Many papers of it's benefits for the gut have been published and it's use has few sides side effects. Start 1 with, or slightly after aeal and see how you react.
Plus diet of course, no processed foods and added sugars, enough fiber.

 

[Blazer95]

thanks for all your takes on this problem. sadly i cant take turmeric as it interferes quite wildly with my SSRI as turmeric is a MAO-inhibitor :I

for now i will concentrate on PPI (for the moment) and loads of tee.

yesterday i drank an organic milk with some organic honey and i slept like a baby after. in opposite of many reports for dairy products being bad, i felt it helped me a little.

slippery elm and marshmallow is also worth a shot.
@hapl808 do you consume marshmallow root as a tea?

thank you guys

 

[Byles]

turmeric is a MAO-inhibitor

Sorry I should have been aware of this.
Also I now realise I meant Curcumin, it's so confusing.

 

[Cipher]

Zinc L-carnosine seems to help some:

https://www.reddit.com/r/Gastritis/comments/11jjugt

https://www.reddit.com/r/Gastritis/comments/19du8fn

https://www.reddit.com/r/Gastritis/comments/wnydf4

https://www.reddit.com/r/Gastritis/comments/n52n4i

 

[Blazer95]

The zinc l carnosine Combination Looks so promising i actually ordered it. Wish me luck

 

[crussher]

The carnivore diet might be helpful.

In the times I’ve been carnivore, my stomach becomes totally soft and quiet. You’d think the opposite would happen, but it’s almost like not having a stomach at all

I can’t speak to gastritis specifically but perhaps look it and carnivore up to see other ppl’s experience

 

[linusbert]

The zinc l carnosine Combination Looks so promising i actually ordered it. Wish me luck

dito, which one did you order, write me pm maybe?

In the times I’ve been carnivore, my stomach becomes totally soft and quiet. You’d think the opposite would happen, but it’s almost like not having a stomach at all

i cant get good clean meat. its either polluted by industry or by spices. i like to eat liver sausage but they put every crap into it like sunflower oil which i do not tolerate and why is there sunflower oil anyways in it... and buying clean meat from my vendor is so expensiv that if i would eat my calories from meat i would need to buy for probably 1000 eurs...

BUT, the bit good liver sausage i have witout the crap and also other meats, seam already in small dosages like 50-100g to slow my digestion and therefore stop my chronic "diarrhea". its not directly diarrhea like in fluid and explosive but i go 2-5 times a day and its soft and sometimes too soft. like the body is just passing food to fast.
but meat changes that, it makes it fewer a day and also harder again.

 

[crussher]

The additives in processed meet are a real problem.

I asked my butcher to prepare me 3kg fatty ground beef (30% fat) twice a week. That comes to 100 euro a week. Then maybe 5 euro per day for eggs, so my carnivore diet costs me around 135 euro per week.

 

[hapl808]

slippery elm and marshmallow is also worth a shot.
@hapl808 do you consume marshmallow root as a tea?

I drink chamomile and other teas like that. For marshmallow and slippery elm and fenugreek, I usually use capsules.

The zinc l carnosine Combination Looks so promising i actually ordered it. Wish me luck

This one sounded great, but I didn't notice much benefit - only did one bottle, though.

The carnivore diet might be helpful.

Didn't really help me, but again - mine seems triggered by exertion, not food. So a gigantic steak and then sleep was fine if I did nothing all day - a gigantic steak and a long phone call would lead to hacking reflux.

I asked my butcher to prepare me 3kg fatty ground beef (30% fat) twice a week. That comes to 100 euro a week. Then maybe 5 euro per day for eggs, so my carnivore diet costs me around 135 euro per week.

I did the same - had a local butcher fresh grind meat for me with specific cuts and fat percentage. Incredibly tasty, and much healthier. I immediate froze it to also keep histamines to a minimum.

 

[linusbert]

do you guys eat it raw or how do you do it? when i cook meat its a mess... the preparation, the cleaning, not good.
eggs, potatoes and noodles are fast, cheap and easy.

 

[Blazer95]

I got the one from "supersmart"

 

[hapl808]

do you guys eat it raw or how do you do it? when i cook meat its a mess... the preparation, the cleaning, not good.
eggs, potatoes and noodles are fast, cheap and easy.

For carnivore? I haven't done that in awhile, but yes - it's messy and a bit tiring. Like anything with these types of illnesses, figuring out hacks and methods to make things simple is important. I would cook meat in a toaster oven - couldn't lean down for the regular oven. I used tinfoil so I could throw away instead of clean. And so forth.

 

[Carl]

Zinc Carnosine is a waste of time IMO. It cannot provide any benefit based upon it's claimed method of action. People recommend it without knowing what actually causes their problems.

Urease-positive bacteria in the stomach induce a false-positive reaction in a urea breath test for diagnosis of Helicobacter pylori infection - osaki et al 2008 - This paper shows a number of bacteria which can cause gastritis. K. pneumoniae and S. Aureus are present on the human body and can very easily get into the stomach. They use biofilms to protect themselves which makes them capable, with mature multilayer biofilms, to resist all antimicrobials.

For everyone else besides Blazer95, reading about Urease is worth doing because it is far more common than is recognised and as the above research and similar papers show, H. pylori is not the only stomach pathogen even though it is the most frequently tested.

 

[Blazer95]

well my urease test was negative so there is that