Regarding labs.What to look for?

Davsey27

Senior Member
Messages
471
Likes
547
I was curious for those of you who may have an idea of what kind of labs to look for that are correlated with what may be driving the Me/Cfs.While at Stanford,I had some concerns that testing was limited and hoping that the immunology psnel I did at thr klimas group will reveal some things.

Part of me worries about medical practitioner's missing out on certain labs.

And if perhaps a functional doctor familiar with chronic immaflammatory response syndrome and various subcategories may be necessary

Thank You
 

Davsey27

Senior Member
Messages
471
Likes
547
Curious if one can have both me/cfs and cirs or if these are two different conditions?

From what little I know about Me/cfs it seems that it may be an umbrella Conditon where one may have comorbid ehlers danlos,cci,post-viral,etc..


Thank You
 

Learner1

Senior Member
Messages
6,253
Likes
11,580
Location
Pacific Northwest
I was curious for those of you who may have an idea of what kind of labs to look for that are correlated with what may be driving the Me/Cfs.While at Stanford,I had some concerns that testing was limited and hoping that the immunology psnel I did at thr klimas group will reveal some things.

Part of me worries about medical practitioner's missing out on certain labs.

And if perhaps a functional doctor familiar with chronic immaflammatory response syndrome and various subcategories may be necessary
I think it is useful to have a very experienced immunologist or infectious disease doctor AND an IFM trained functional medicine doctor or a Bastyr-trained naturopathic doctor both work on testing you.

Hip's Roadmap us a decent start, but it contains a lot of out of date information.

i started with Charles Forsyth's list, attached, then my doctors went much further. At a minimum, I would do:
  • CBC and CMP
  • Immunoglobulins with subclasses
  • NK function
  • Lymphocyte subset panel
  • Diagnostics CytoDX
  • Prostaglandin D2 or F2
  • Chromagranin A
  • EBV, CMV, HHV6 and, if applicable, HSV2 or 2 and Zoster, both antibodies and PCRs
  • Chlamydia and myoplasma pneumoniae antibodies and PCR if possible
  • Lyme and co-infections, if suspicious
  • Cocksackie virus, if suspicious
  • DUTCH Test Complete
  • ACTH stim test
  • Full thyroid panel
  • Iron panel
  • D-dimer, thrombin/antithrombin, etc.
  • Genova Diagnostics Metabolomix+ or Great Plains Organic Acids Test
  • Any antibodies you have symptoms for, particularly ANA, CellTrend, Mayo Cunningham or Pavel panel, etc
  • Genetic testing for anything weird ig nothing above shows anything, or if suspected.
  • MRI of brain, if suspicious
  • Treadmilleyabolic testing

Curious if one can have both me/cfs and cirs or if these are two different conditions?

From what little I know about Me/cfs it seems that it may be an umbrella Conditon where one may have comorbid ehlers danlos,cci,post-viral,etc..
It is quite possible to have all kinds of comorbidities.
 

Attachments