Regarding labs.What to look for?

[Davsey27]

I was curious for those of you who may have an idea of what kind of labs to look for that are correlated with what may be driving the Me/Cfs.While at Stanford,I had some concerns that testing was limited and hoping that the immunology psnel I did at thr klimas group will reveal some things.

Part of me worries about medical practitioner's missing out on certain labs.

And if perhaps a functional doctor familiar with chronic immaflammatory response syndrome and various subcategories may be necessary

Thank You

 

[Rebeccare]

The ME/CFS Clinician coalition has put together a list of recommended tests, although I imagine if you ask someone knowledgeable about testing like @Learner1 , they would be able to tell you about some more which aren't on this list.

 

[Zebra]

Hi, @Davsey27

I don't have the energy to track this down for you, but somewhere on PR is @Hips road map to CFS/ME work up. You might want to check it out.

Best wishes!

 

[Cipher]

Here's @Hip's roadmap that @Zebra referred to, it's great.

 

[Davsey27]

Curious if one can have both me/cfs and cirs or if these are two different conditions?

From what little I know about Me/cfs it seems that it may be an umbrella Conditon where one may have comorbid ehlers danlos,cci,post-viral,etc..


Thank You

 

[Learner1]

I was curious for those of you who may have an idea of what kind of labs to look for that are correlated with what may be driving the Me/Cfs.While at Stanford,I had some concerns that testing was limited and hoping that the immunology psnel I did at thr klimas group will reveal some things.

Part of me worries about medical practitioner's missing out on certain labs.

And if perhaps a functional doctor familiar with chronic immaflammatory response syndrome and various subcategories may be necessary

I think it is useful to have a very experienced immunologist or infectious disease doctor AND an IFM trained functional medicine doctor or a Bastyr-trained naturopathic doctor both work on testing you.

Hip's Roadmap us a decent start, but it contains a lot of out of date information.

i started with Charles Forsyth's list, attached, then my doctors went much further. At a minimum, I would do:

• CBC and CMP
• Immunoglobulins with subclasses
• NK function
• Lymphocyte subset panel
• Diagnostics CytoDX
• Prostaglandin D2 or F2
• Chromagranin A
• EBV, CMV, HHV6 and, if applicable, HSV2 or 2 and Zoster, both antibodies and PCRs
• Chlamydia and myoplasma pneumoniae antibodies and PCR if possible
• Lyme and co-infections, if suspicious
• Cocksackie virus, if suspicious
• DUTCH Test Complete
• ACTH stim test
• Full thyroid panel
• Iron panel
• D-dimer, thrombin/antithrombin, etc.
• Genova Diagnostics Metabolomix+ or Great Plains Organic Acids Test
• Any antibodies you have symptoms for, particularly ANA, CellTrend, Mayo Cunningham or Pavel panel, etc
• Genetic testing for anything weird ig nothing above shows anything, or if suspected.
• MRI of brain, if suspicious
• Treadmilleyabolic testing

Curious if one can have both me/cfs and cirs or if these are two different conditions?

From what little I know about Me/cfs it seems that it may be an umbrella Conditon where one may have comorbid ehlers danlos,cci,post-viral,etc..

It is quite possible to have all kinds of comorbidities.