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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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As you imply, any reported improvements are anecdotal. Other anecdotes suggest that some patients have been harmed by probiotics. I've been seriously and permanently (so far) harmed by probiotics. What might benefit one of us might harm another. So, caution is advised.The fact that some people have reported that fecal mass transplants have relieved their ME symptoms suggests that, at least for those people, the gut flora does not have a protective role.
I'm convinced my CFS arose because I was on tetracycline for more than a year as an anti-acne regiment when I was a teenager in the 70's. The antibiotics killed off much of my beneficial bacteria and a massive fungal overgrowth messed up my small intestinal lining. I was rarely ill before, but often got viral symptons after. Didn't know anything about probiotics then.
The fact that some people have reported that fecal mass transplants have relieved their ME symptoms suggests that, at least for those people, the gut flora does not have a protective role.
Sorry if this has been answered elsewhere, but there is a whole forum on this:Are there any papers apart from the Mae's paper which give more information about dairy and gluten and their role in leaky gut? Why is it that they get included in leaky gut diets?
As you imply, any reported improvements are anecdotal. Other anecdotes suggest that some patients have been harmed by probiotics. I've been seriously and permanently (so far) harmed by probiotics. What might benefit one of us might harm another. So, caution is advised.
A patient developped sepsis after FMT. it is not without risk.I agree - although I would like to know what effect FMTs have on people who can´t tolerate probiotics, I am not willing to try it myself, for a couple of reasons!
Oh, and it wasn´t just anecdotal, there was that study that someone posted the link for above, although that was bacteriotherapy rather than FMT.
Which source are you referring to?A patient developped sepsis after FMT. it is not without risk.
Yes!!! @EastTenn - Same with me! A year of Tetracycline was the start of my IBS as a teenager. Its always been in the back of my mind that maybe that was the predisposing factor in the development of the disease.]
Someone I know. Sorry i cannot be more precise. My point is we have to be careful and aware of possible risks of any intervention.Which source are you referring to?
Are there any papers apart from the Mae's paper which give more information about dairy and gluten and their role in leaky gut? Why is it that they get included in leaky gut diets?
I'm not qualified to give an informed answer on that, just be aware that measurement of lactate levels from exercise usually looks at L-lactate which is a normal product of anaerobic metabolism but D-lactate is a reflection of bacterial overgrowth in the gastro-intestinal tract that's usually encountered in short bowel syndrome.
http://www.biolab.co.uk/docs/dlactate.pdf
In my case, my reaction to certain foods suggests it is the former.
As you imply, any reported improvements are anecdotal. Other anecdotes suggest that some patients have been harmed by probiotics. I've been seriously and permanently (so far) harmed by probiotics. What might benefit one of us might harm another. So, caution is advised.