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I got a very strange result from RED LABS. I did their qPCR test for phages and they diagnosed me with “relapsing fever”.
This is what I found:
“ Tick-borne relapsing fever is characterized by recurring febrile episodes that last ~3 days and are separated by afebrile periods of ~7 days duration. Along with fever, patients may experience a wide range of nonspecific symptoms (Table 1). Each febrile episode ends with a sequence of symptoms collectively known as a “crisis.” During the “chill phase” of the crisis, patients develop very high fever (up to 106.7°F or 41.5°C) and may become delirious, agitated, tachycardic and tachypneic. Duration is 10 to 30 minutes. This phase is followed by the “flush phase”, characterized by drenching sweats and a rapid decrease in body temperature. During the flush phase, patients may become transiently hypotensive. Overall, patients who are not treated will experience several episodes of fever before illness resolves.”
Well. Year's ago... I think 20 years ago I was in Portugal. It's a risk area for these types of Borrelia. I had a very high fever, had to go to the doc. The fever lasted a few days (3-4) and was horrible. Fun fact: nobody else got fever in my family nor did I have flu symptoms. So it's not very likely this was a viral infection. I didn't got diarrhea or sth related, so no food poisoning. But the fever didn't relapse. After a few days it was gone.
KDM diagnosed me with Lyme in 2019 (of course). He prescribed three weeks of an AB IV and six months of Rifaximin (which my GP stopped after six weeks telling me that KDM must be crazy). I didn't improve at all.
I don't remember a tick bite or skin sensations.
So my questions:
Can Lyme show up many years later? ME onset (very mild) in 2013.
Can one have Lyme but doesn't react to AB treatment?
What to do now? Liquor was negative, some weak positive Western Blots but I think for B. Burgdorfii. Some were negative.
Is RED Labs the Belgian version of Armin Labs = not reliable?
Should I try Disulfiram or what to do now? A Lyme doc said I have to do a LTT. But I know this is not a reliable test bc of cross-reactions with other pathogens and the Robert Koch Institut (sth like the German Holy Chair for infectious diseases) says it's not reliable due to false positive outcomes.
What to do now? I don't want to miss sth!
Thanks a lot
Martin
This is what I found:
“ Tick-borne relapsing fever is characterized by recurring febrile episodes that last ~3 days and are separated by afebrile periods of ~7 days duration. Along with fever, patients may experience a wide range of nonspecific symptoms (Table 1). Each febrile episode ends with a sequence of symptoms collectively known as a “crisis.” During the “chill phase” of the crisis, patients develop very high fever (up to 106.7°F or 41.5°C) and may become delirious, agitated, tachycardic and tachypneic. Duration is 10 to 30 minutes. This phase is followed by the “flush phase”, characterized by drenching sweats and a rapid decrease in body temperature. During the flush phase, patients may become transiently hypotensive. Overall, patients who are not treated will experience several episodes of fever before illness resolves.”
Well. Year's ago... I think 20 years ago I was in Portugal. It's a risk area for these types of Borrelia. I had a very high fever, had to go to the doc. The fever lasted a few days (3-4) and was horrible. Fun fact: nobody else got fever in my family nor did I have flu symptoms. So it's not very likely this was a viral infection. I didn't got diarrhea or sth related, so no food poisoning. But the fever didn't relapse. After a few days it was gone.
KDM diagnosed me with Lyme in 2019 (of course). He prescribed three weeks of an AB IV and six months of Rifaximin (which my GP stopped after six weeks telling me that KDM must be crazy). I didn't improve at all.
I don't remember a tick bite or skin sensations.
So my questions:
Can Lyme show up many years later? ME onset (very mild) in 2013.
Can one have Lyme but doesn't react to AB treatment?
What to do now? Liquor was negative, some weak positive Western Blots but I think for B. Burgdorfii. Some were negative.
Is RED Labs the Belgian version of Armin Labs = not reliable?
Should I try Disulfiram or what to do now? A Lyme doc said I have to do a LTT. But I know this is not a reliable test bc of cross-reactions with other pathogens and the Robert Koch Institut (sth like the German Holy Chair for infectious diseases) says it's not reliable due to false positive outcomes.
What to do now? I don't want to miss sth!
Thanks a lot
Martin