Recovering and what helped

[pamojja]

Yours is the third recovery/improvement story I've read in the past month that I found to be both inspiring and insightful) @pamojja @shastamax

I’ve only read about people’s success with Valtrex. There was a post awhile back. Someone put together a list of success stories and how many levels they improved with their interventions. By far the best results were from people who took various anti viral medication. I remember Valtrex was the most popular drug.

You mean this thread? https://forums.phoenixrising.me/threads/list-of-me-cfs-recovery-and-improvement-stories.80502/

In its first post, it lists just 3 success stories with Valtrex. Similar 3 only, where Wayne thought he could see similarities here too:

The biggest similarity are chronic diseases for decades, where conventional medicine knows no cure, therefore questioning, self-reliance, trial and error individual approach instead,

But all that we have in common with many moderate severe self-experimenters here on this forum. Sadly, without affecting remissions for most.

But let's be honest. Only success stories are worth writing. There are literary thousands here where neither Valtrex: Nor questioning, self-reliance, individual trial and error approaches brought relieve from ME/CFS.

The best result from Valtrex, though still no placebo controlled trial, was in EBV-positive ME/CFS only.

 

[Artemisia]

I’ve only read about people’s success with Valtrex. There was a post awhile back. Someone put together a list of success stories and how many levels they improved with their interventions. By far the best results were from people who took various anti viral medication. I remember Valtrex was the most popular drug.

You mean this thread?

She may mean this thread where 50% of people trying Valcyte had major improvement --and for Valtrex 13% major improve and 43% minor improve

https://forums.phoenixrising.me/thr...ed-and-which-led-to-major-improvements.57373/

 

[Artemisia]

@pamojja
where is your improvement story Wayne mentions? I can't find it.

@Nanni congrats on your improvements!

 

[pamojja]

where is your improvement story Wayne mentions? I can't find it.

Most extensively documented at longecity forum already some time ago for PAD and COPD, with later addition of PEMs remission: https://www.longecity.org/forum/stacks/stack/111-pad-and-additional-remissions/