Excellent post from another thread:
There is much going on in the ME world as of late. I will list a few and there maybe some overlap from other peoples posts. This helps me see hope as well even when things seem very grim. Here is a list of whats going on that i know of or that I have heard of:
- PACE Trial being retracted as per Kati [edit by Sasha: there is pressure for certain analyses to be retracted but this is not yet happening]
- OMF Study on the severely ill
- NIH Study
- Norway and Rutuximab and Cychlo
- Firing of Hemispherix CEO and hopes for Ampligens approval
- Levine, Peterson, Lipkin are working together on something as per Levines recent talk
- Lipkin study
- Jarred Younger and Neuro Inflamation ( he is having to turn away students cause of so much interest)
- Stuff out of Harvard and Small Fiber Neuropathy and FM and possible link to ME/CFS (Dr Oaklander)
- Some interesting work that talks about Anti adrenergic receptors and ME, Rutuximab and POTS
- First official protest by MEAction in Washington DC (If you can help out please do)
-Work out of Simmaron Research and Dan Peterson
- grumblings out of the UK and Canada about Rutuximab trials they are waiting on Norways results as per what I can see from Canadas perspective.
- Dr Navaiux and OMF finding clues in the Mitochondria already, part of OMF
- Dr. David Bell joining OMF
- potential Biomarker out of Australia
I just one to point one thing out we know Rutuximab is one heck of a serious drug. Its used for Lymphoma, other cancers, autoimmune disease, etc. If approved for ME we overnight become part of the most serious disease on the Planet....they can't deny it anymore. Further once this happens and it is approved it would be smart of our organizations to throw in everything else about biomarkers, NIH Study, OMF, Virus Hunter, OMI findings.....you get the picture.
We are close, I think once PACE is demolished the flood gates will open Media will run with this. We will get more funding from NIH and heqlth authorities. Not to mention once PACE is done with...biomarkers are found...then big pharma will be all over us ME/CFS'ers like a fat kid on a smarty.....there are millions of us worldwide....
Hold on history is going to be made and we will recieve help.
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