Reading Whitney Dafoe's Story "I Started Eating Food Again in 2024...What Will 2025 Bring?"

[SWAlexander]

Reading Whitney Dafoe's Story, I encourage everyone to have regular blood tests like INR or aPTT.

Since I have Factor V Leiden and antiphospholipid syndrome (APS) a genetic clotting disorders (e.g., Factor V Leiden, APS) both increase your risk of abnormal blood clotting, which can make your blood "thicker" than normal. Both conditions can increase your risk of deep vein thrombosis (DVT), pulmonary embolism (PE), or even strokes if not carefully monitored.
Read more: https://swaresearch.blogspot.com/2025/02/thick-blood-due-to-genetic-clotting.html

 

[Learner1]

Agreed. However, the topic of this thread doesn't match your post. Might you change it to make more sense?

I have Factor 2, another clotting mutation and agree that testing clotting factors regularly is helpful

 

[JES]

Yeah based on the headline I thought this was about Whitney Dafoe being able to eat again, which is a remarkable development. Maybe it deserves its own thread, though as I understand it Whitney hasn't shared any detail to *what* might have contributed to this major improvement.

I think they are not very keen on quickly sharing what treatment or approach may have helped him to get to that stage until they can figure it out themselves and make sure the improvement is permanent.

 

[SWAlexander]

I have Factor 2

You are right, there is much more. Thick blood has many causes.
May I suggest to find out how Factor 2 differs from Factor 5 (Factor V Leiden)?

APS -Antiphospholipid Syndrome and Endothelial Injury an autoimmune disorder characterized by the presence of antiphospholipid antibodies (aPLs) that promote thrombosis by triggering endothelial dysfunction, platelet activation, and complement activation.

Another would be Polycythemia Vera is also a rare but serious blood disorder primarily driven by JAK2 mutations, particularly JAK2 V617F (rs77375493).

So many more but rarely tested or diagnosed.

 

[kushami]

Here is a link to his post on Reddit:

https://www.reddit.com/r/cfs/comments/1irni6a

I’m not sure whether it’s also on his website. Our internet here is running very slow and I can hardly get anything to open, hence the Old Reddit link.

Quick summary: After 11 years of not being able to eat or drink, Whitney reports that he started drinking water, other fluids, and then eating again last year. He does not know why this happened and it was not linked to any treatment. He says he just felt thirsty one day, and it built from there.

 

[SWAlexander]

Here is a direct link: https://www.whitneydafoe.com/mecfs/?post=i-started-eating-food-again-in-2024-what-will-2025-bring