Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Lengle please get tedted for lupus asap: both the rash and sunsensitivity are typical of lupus.
I have rosacea, which looks similar to a lupus rash, but has a few differences. It can get worse with heat, I don't know about sunlight. However, I live in Australia, so usually if I am in the sun I am hot, lol. It can also be worsened by alcohol, hot foods and various other things.
I also have a rash-like thing just above the hair-line at the back of my head. It comes and goes a bit, can be very itchy and sometimes scabby. It definitely gets worse if I don't dry the area thoroughly. It's a real pain in summer, cos it gets worse if I sweat. Yuck.
take care, ness
I have a red rash on my face that may or may not be autoimmune related. Rheumatologist thought it could be related to lupus like conditions. It gets worse in bright light and can't handle direct sun at all. Very inconvenient.
Doesn't HHV-6 cause some rashes?