Questions for Cholestyramine users

[ebethc]

If you've tried cholestyramine AND it worked for you:

1. How long did it take for you to notice a POSITIVE difference?

2. How many weeks or months did you use it?

3. How frequently do you go back for another round (if at all)?


thanks.

 

[*GG*]

Been on it for years!

GG

 

[ebethc]

Been on it for years!

GG

so, you're continually on it? ie. you take it every day?
how long did it take to work?

 

[*GG*]

Yes, continually on it. My Dr does the VCS test and I am supposedly still toxic, Dr Shoemaker was also big on CSM and Visual Contrast test?

I had high levels of mercury aroun 2009, had it retested about 1 year later. Levels came back much lower. So it could depend upon what you are trying to detox?

GG

 

[fromstrawtomore]

1. How long did it take for you to notice a POSITIVE difference?

It took two months of TID-QID dosing (4g CSM) to pass the VCS test.

2. How many weeks or months did you use it?

Seven months. Still on it. I changed from compounded to normal (with aspartame) after four months due to cost.

3. How frequently do you go back for another round (if at all)?

I go back and forth passing the VCS so I'm continuing full dose. For most long term ME/CFS I would imagine six to twelve months, but sometimes longer, would be expected.

 

[Gingergrrl]

Am bumping this back to top as I am also interested in hearing more reports on CSM.

 

[student]

Choly beginner. I am the greenhorn.
I had used Chlorella binders (Klinghardt. daily 80 small) before this. But I dought that they brought mold out.
1. Can not tell. – It is my 7th day using 4x dayly 4 g Choly. Iam still brushing my mouth 2x daily, with 1/ 10 of the package. Bevore taking Choly 30min befor the meals. I take poop softeners now in order to not constipate in this first week. (I have gained much benefit from other things: Resistant starch. I was 6 weeks away – from the mold house. I am slowly making progress - with lowering mold load. Room by room. I started myrrhe nasal - plus I block my nose of the whole day.- These things changed a lot for a start.)
2. this first week - only. And I see my doctor to get perscription for the next 20 days.
3. Plans are to use it 3- 4 weeks every 3 mounth now.
My choly. start was – on a 3 days trip to a (semi) safe place. I read Lisas start-up story to prepare my Choly use. First 5 times – I was very cautios. So I used up to 2 g – to get my throught clean (up to 40% material every time). Brushing thees with Choly. Gurgel with Choly-water – like what I did with the „oil drawing“. Also in the head down positions. Yes I had some of the strong mouth reaktions- and I spitted out quite a bit. I felt that slowly I will get used to this material. Than I felt more safe to swallow – and there was no vomiting. I used Oil. I had not eaten (on fasting) and drank a lot of (3 L) water. It was stressfull. But this way everything went well. Appart from constipation for 3 days. I went out, was aktive and did my daily duties. I would do it again.

regards student

update. Yes on day 8: My tomie is swolen. Some poo came out. But I do not feel well and little unsafe. So this time I pause with the Cholestyramine.

 

[Forebearance]

Be sure to eat a lot of healthy, natural fats, student. That will help replace the fats that cholestyramine carries out, and will help with constipation.

 

[*GG*]

Be sure to eat a lot of healthy, natural fats, student. That will help replace the fats that cholestyramine carries out, and will help with constipation.

Hmm, wish I had issues with constipation.

GG

 

[Dufresne]

Be sure to eat a lot of healthy, natural fats, student. That will help replace the fats that cholestyramine carries out, and will help with constipation.

Yup, I find it almost impossible to keep weight on when I'm binding.

 

[student]

The first day &night - I feel little better. I could eaven go out to a group meating for this evening.
So I will pause and trie to get much Cholyst. out of the system.
Yes, the direction with oil and fat helped me. Thanks.

 

[xrayspex]

hey does anyone know of a place to get cholestryamine without a prescription? I would like to try it--a friend gave me some but it has aspartame and that stuff gives me bad side effects so can t use it . Aspartame will cause headaches rashes depression --back when I drank the new diet pepsi around 1983-before had cfs when diet soda changed to it in early 80s--I noticed that. Was one of first obvious MCS experiences.--anyway, sad they had to a lot of cholestyramine with nutrasweet--can ya get it without that?

 

[ebethc]

hey does anyone know of a place to get cholestryamine without a prescription? I would like to try it--a friend gave me some but it has aspartame and that stuff gives me bad side effects so can t use it . Aspartame will cause headaches rashes depression --back when I drank the new diet pepsi around 1983-before had cfs when diet soda changed to it in early 80s--I noticed that. Was one of first obvious MCS experiences.--anyway, sad they had to a lot of cholestyramine with nutrasweet--can ya get it without that?

no idea where to get cholestyramine w/o a rx, BUT there are some natural alternatives... Chlorella or plant sterols are the ones I've heard of ... plant sterols didn't agree w me.. sorry, can't remember why...Here's one product

https://www.amazon.com/Pure-Encapsulations-CholestePure-Supplement-Metabolism/dp/B0015VJC34?th=1

 

[Jesse2233]

Has anyone seen significant, sustained improvement from cholestyramine?

I know it's central to the Shoemaker protocol, and, though I'd like to, I haven't been able to find any glowing reviews