Gingergrrl
Senior Member
- Messages
- 16,171
Hi @Dmitri it is interesting to me that so many of us have this exact ANA pattern of 1:160 speckled and that rheumy's are dismissing it b/c it does not match with further tests for known diseases like lupus, etc.
Forgive me if I am repeating myself (and did not go back and re-read this whole thread) but in my case the autoimmune issue seems so clear with Hashimoto's, two other autoantibodies (anti calcium channel and anti GAD65), autoimmune premature ovarian failure per my Endo, and now the positive ANA titer.
I also have POTS, MCAS, and severe breathing difficulties. Mainstream docs consider all of this "normal" or "false positives" and I've now given up on mainstream medicine but my doctors who think outside the box feel that everything I have is related and I will be starting IVIG as soon as they can schedule me, hopefully next week, and then I hope in a few months to try RTX.
I am so certain that I have a calcium channelopathy/autoimmune disease that just does not have a name yet to mainstream science. Am willing to experiment with these treatments hoping they will improve my breathing, MCAS, and dysautonomia.
Am hoping others do NOT give up and that I will eventually have something positive to report back here.
Forgive me if I am repeating myself (and did not go back and re-read this whole thread) but in my case the autoimmune issue seems so clear with Hashimoto's, two other autoantibodies (anti calcium channel and anti GAD65), autoimmune premature ovarian failure per my Endo, and now the positive ANA titer.
I also have POTS, MCAS, and severe breathing difficulties. Mainstream docs consider all of this "normal" or "false positives" and I've now given up on mainstream medicine but my doctors who think outside the box feel that everything I have is related and I will be starting IVIG as soon as they can schedule me, hopefully next week, and then I hope in a few months to try RTX.
I am so certain that I have a calcium channelopathy/autoimmune disease that just does not have a name yet to mainstream science. Am willing to experiment with these treatments hoping they will improve my breathing, MCAS, and dysautonomia.
Am hoping others do NOT give up and that I will eventually have something positive to report back here.