• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

Pyridostigmine

Ninan

Senior Member
Messages
523
And it says on potsuk.org and wikipedia that it's used to treat OI. Any experiences on this?
 

Sushi

Moderation Resource Albuquerque
Messages
19,934
Location
Albuquerque
This drug is Mestinon. It has been used by many Dysautonomia doctors with success in a percentage of patients, but as I remember, it is a fairly small percentage of patients. It probably works for a subset, but I don't know what subset that is.

None of the patients I know personally who tried had success with it.

Best,
Sushi