snowathlete
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very witty, i like it.I just changed a few words in the article, left out a couple of paragraphs, and posted the rest as a comment:
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
very witty, i like it.I just changed a few words in the article, left out a couple of paragraphs, and posted the rest as a comment:
There's also the possibility of making a formal complaint about Dr Edward Shorter's mocking article to his University.
I remember the name, Borigini he may have posted some controversial stuff in the past (no energy to search the forum at the moment)Maybe Shorter was embarrassed by all of your fabulous rebuttals and pulled his post to save face.
In trying to regain access to Shorter's post I found yet a 3rd post on ME/CFS here: https://www.psychologytoday.com/blo...02/no-you-don-t-have-chronic-fatigue-syndrome
It ends with the line "Maybe the SEID patient will now not only start to be diagnosed, but also heard."
I commented on this earlier. Someone who is signed up needs to check. I might try to sign up later, but I do not know what barriers are in place. Its not a simple login registration. Its not a paywall I think, but private membership.Looks like they either put it behind a paywall or pulled it. The link on the first page goes to a login page now.
This guy has to be a troll. I've never seen such blatant BS printed about nearly anything. It reads like the comment section on Youtube.
If this is the case....................well done peeps............well done! You guys rock!It looks like they pulled the offensive blog entry. It's probably still there, but returned to the author instead of open to the public, since a login prompt comes up when trying to view it now. It's not listed on their recent blogs page, nor on Shorter's page.
University of Toronto professor writes hate blogpost, insults Institute of Medicine.
Yesterday Dr Edward Shorter, PHD wrote a piece on chronic fatigue syndrome in magazine 'Psychology Today'. It made it to my google alert. Shortly afterwards it was shared to thousands of horrified patients sufferers, most if not all of whom are currently receiving nlittle to no medical care.
Recently the disease chronic fatigue syndrome, also known as myalgic encephalomyelitis has been renamed SEID, or Systemic Exertion Intolerance Disease by an IOM working group who decided after revieweing over 9000 papers on the disease that the terminology that has been used for this disease was demeaning for the patients and non-conducive to receive adequate health care for their condition. The IOM committee came up with a diagnostic criteria which would facilitate diagnosis and identification of these patients who are literally been left behind by the health care system.
In Canada, there are over 411,500 of us, as per the 2010 Canadian Community Health Survey. The Canadian Institutes of Health Research is funding abysmal research for this disease, at a rate of less than 5 cents per patient per year, for the last 10 years. Just to compare, Parkinson's Disease is funded at a rate of 420$ per patient per year.
Such blogpost was unbelievably insulting and derogatory for the patient population. I am requesting that the University of Toronto reads this blogpost and consider whether this individual aligns with their values. I am posting the blog post because it disappeared from online circulation, but the damage has been done.
If you review the extensive 300+ page IOM report you will find out that patients suffer much injustice, much stigma and much contempt from society and from the medical community. It is time that it changes. Here is the link to the free download: http://www.iom.edu/reports/2015/me-cfs.aspx
Zero tolerance is necessary now. The time for quietly accepting abuse is over. We need to expose all of them as we discover them.Unfortunately I think some of those bad psychs out there are about to get even badder out of anger towards the ME/CFS community as they dont like what is going on currently. We need to be stamping down on them and complaining whenever we come across these bullies or such childish behaviour.
+1000Zero tolerance is necessary now. The time for quietly accepting abuse is over. We need to expose all of them as we discover them.
Zero tolerance is necessary now. The time for quietly accepting abuse is over. We need to expose all of them as we discover them.
He is in a very strange position, since he does not have a medical degree, yet is a full professor on the faculty teaching psychiatry, which requires a medical degree.