PREMs is a new term to me. Given the varied and often unsatisfactory experiences people with ME/CFS can have in a health care system, perhaps the term or information relating to it might be of use in some way (though this reference is a book chapter so a bit obscure)
http://link.springer.com/chapter/10.1007/978-3-319-32851-5_17
http://link.springer.com/chapter/10.1007/978-3-319-32851-5_17
pp 405-417
Date: 15 September 2016
PROMs vs. PREMs (Patient-Reported Experience Measures)
- Marwan Bukhari
Abstract
Patient-reported outcomes as well as experience measures are now the big news in the modern health service. The importance comes from their growing potential to trigger changes in healthcare delivery. Adopting these tools in standard clinical practice represents a major step forward toward patient-centered care and a new approach to assess outcomes of medical care. This chapter explores exactly what these terminologies mean. It demonstrates the differences between experience and outcome measures and reviews the evidence/need for patient-reported experience measures (PREMs) in inflammatory arthritic conditions management. The interface between PREMs and quality of care in inflammatory arthritis conditions is analyzed in comparison to diabetes mellitus as an example of chronic disease medical care. Examples of PREMs tools developed recently are included in the appendices.
Keywords
Rheumatoid arthritis Patient-reported outcome measures Patient-reported experience measures PREMs