I have had CFS for over 20 years. That part is doing fine. Three years ago, I got VERY ill. My body stopped working one day on my anniversary.
Couldn't stand or sit, etc. bp was HIGH. 24 hours a day I was nauseated and horribly dizzy and lightheaded, burning hot, could not stand any sounds, on and on.
I now had POTS/Dysautonomia/Autonomic Neuropathy. Also, what goes with it often is Peripheral Neuropathy. So, my feet were tingly and they had loss of sensation. I was SO afraid. My doctor was so calm. He just said to take Alpha Lipoic Acid. After that, I was started on Benfotiamine (fat/water soluble Vit. B1) and a VERY low sugar and carb diet. I keep my blood sugar low and level. I have learned all about nerves and what they need and what is bad for them.
My feet are doing GREAT now. Also, my POTS is MUCH better. My nerves are SLOWLY healing. I can walk for a longer time without feeling I will faint and do things around the house like wash clothes, and clean the kitchen. My hubby does most work and cooking. But now I can finally help! Great since he works all day in his office.
I cannot clean the house yet. We have a couple that does that. I cannot garden outside yet but I hope I will again. I do garden inside. African Violets and other plants. Hubby plants my outdoor flowers right now.
Nerves heal slowly but there is a lot we can do to get them there.
