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Probiotic/Digestive enzyme reccomendations

nryanh94

Senior Member
Messages
165
Hi all,

I've decided to approach my treatment from the gut. I've already purchased glutamine and have started on a diet plan.

I was curious if anyone had any recommendations for good probiotics/digestive enzymes to work on leaky gut.

Thank you
 

Sancar

Sick of being sick ~
Messages
98
Location
So Cal USA
Jarrow - Saccharomyes Boulardii+MOS It was recommended to me by a CFS specialist regarding ‘leaky gut’ isuues. Each of us has a different set of “Gut Isuues” due to food and chemical tolerances. That being said you may need to try a few different Probiotics out before you find one that suits you best.

I also drink “plain” low-fat Kefir 3-4 Times a week and that has helped me.
 
Messages
102
I used kim chi, sour kraut, Full Fat Kefir, lots of fiber, and resistant starch. Most store bought probiotics don't even scratch the surface. Pharmacy bought ones like VSL-3 are expensive and can have a big impact depending on the scenario. Research on your own about the pharmacy probiotics and why you would or wouldn't uses them.

There are many studies now out showing that beneficial bacterial balance is achieved by eating lots of fiber and resistant starch.
 

Richard7

Senior Member
Messages
772
Location
Australia
I would suggest that you look at this
it contains good information about substances that increase or decrease the permeability of the gut.


I would also suggest that you look at getting some betaine HCL with pepsin (most of us have trouble making stomach acid)

For enzymes I use creon pancreolipase and Klaire Labs Sibb Zymes. Pancreolipase is a purified pancreatic extract that contains lipases, amylase and zymogens (inactive forms of proteases). Sibb Zymes is a collection of enzymes designed to duplicate the the work done by brush border enzymes (the ones teathered to your small intestine).

You will also probably need bile, I take ox bile.

When it comes to probiotics it is probably best to check out this site https://cfsremission.com/.

Personally I did not do well with yeasts like S Boulardii.

I think that the work by the Melbourne group suggests that getting digestion right will be a precondition for getting the gut right.

You may also want to check out this site http://www.badbugs.org/. I do not know how things are with your doctor, but I was able to convince my doctor to order the necessary pathology to do a PCR test for pathogens (I had b. hominis) and take the antibiotics listed on the site.

If this is a problem it would make sense to treat if before taking a lot of expensive probiotics.
 

ebethc

Senior Member
Messages
1,901
I used kim chi, sour kraut, Full Fat Kefir, lots of fiber, and resistant starch. Most store bought probiotics don't even scratch the surface. Pharmacy bought ones like VSL-3 are expensive and can have a big impact depending on the scenario. Research on your own about the pharmacy probiotics and why you would or wouldn't uses them.

There are many studies now out showing that beneficial bacterial balance is achieved by eating lots of fiber and resistant starch.

which resistant starch do you consume?
 

kangaSue

Senior Member
Messages
1,849
Location
Brisbane, Australia
Digest Gold is often reccommended in various forums to do with GI dysmotility. The only thing along these lines that I could tolerate with having severe gastroparesis was the prescription pancreatic enzymes Creon.

One observation I have is that lipid metabolism would appear to play a big part in gut problems and most supplemental digestive or pancreatic enzymes tend to have a relatively low lipase content.
 

ebethc

Senior Member
Messages
1,901
One observation I have is that lipid metabolism would appear to play a big part in gut problems and most supplemental digestive or pancreatic enzymes tend to have a relatively low lipase content.

i believe dr maureen hanson at cornell theorizes that lipid metabolism is screwed up in cfs'ers.. .I'm looking forward to hearing more from her on this..

do you take creon w every meal, or just when you have meat of any kind?
 
Messages
62
Digest Gold is often reccommended in various forums to do with GI dysmotility. The only thing along these lines that I could tolerate with having severe gastroparesis was the prescription pancreatic enzymes Creon.

One observation I have is that lipid metabolism would appear to play a big part in gut problems and most supplemental digestive or pancreatic enzymes tend to have a relatively low lipase content.


all digestive enzymes i can find are made from mold/fungi , which i know i will not go well with.

so i am left with pancretic enzymes to try. Any good ones you suggest apart from Creon?
 

ebethc

Senior Member
Messages
1,901
all digestive enzymes i can find are made from mold/fungi , which i know i will not go well with.

so i am left with pancretic enzymes to try. Any good ones you suggest apart from Creon?

wobenzym or vascuzyme... both OTC
 

kangaSue

Senior Member
Messages
1,849
Location
Brisbane, Australia
i believe dr maureen hanson at cornell theorizes that lipid metabolism is screwed up in cfs'ers.. .I'm looking forward to hearing more from her on this..

do you take creon w every meal, or just when you have meat of any kind?
With any meal or snack that has some form of fat in it is the recommendation. I don't snack so just take it with main meals.
 

kangaSue

Senior Member
Messages
1,849
Location
Brisbane, Australia
all digestive enzymes i can find are made from mold/fungi , which i know i will not go well with.

so i am left with pancretic enzymes to try. Any good ones you suggest apart from Creon?
I haven't found an over the counter pancreatic enzyme that I tolerate for reasons unknown even though I was trying things with only 3 base enzymes (protease, amylase and lipase) the same as in Creon. Maybe it's to do with the different activation times built into Creon for the different enzymes and this is the only one that I could take without getting abdominal pain from it.
 

Thinktank

Senior Member
Messages
1,640
Location
Europe
really? I thought creon is for meat, but it's for fat?
Creon (pancreatin) is a complete digestive enzyme containing amylase, lipase and protease. So it digests fats, proteins and carbohydrates.

Creon is the only digestive enzyme that i have been able to tolerate (Partially). Enzymes sourced from fungi, bacteria or plants don't do well with me.
 

ebethc

Senior Member
Messages
1,901
Creon (pancreatin) is a complete digestive enzyme containing amylase, lipase and protease. So it digests fats, proteins and carbohydrates.

Creon is the only digestive enzyme that i have been able to tolerate (Partially). Enzymes sourced from fungi, bacteria or plants don't do well with me.

i've heard it's super expensive.. hope you have good insurance..
 

Thinktank

Senior Member
Messages
1,640
Location
Europe
i've heard it's super expensive.. hope you have good insurance..
My insurance pays for it. But even then without insurance it only costs me if converted to USD $40 or so for a bottle.
I feel sorry for you Americans, having to pay ridiculous amounts of money for health care.
 

ebethc

Senior Member
Messages
1,901
My insurance pays for it. But even then without insurance it only costs me if converted to USD $40 or so for a bottle.
I feel sorry for you Americans, having to pay ridiculous amounts of money for health care.

I don't get it at all.... One of my friends lives near Genentech (maker of rituximab, and many other durgs) and all her neighbors work there and claim that high drug prices are due to all the money they have to pay in Washington DC (Food & Drug administration, lobbying etc...) Something has to give..

Second, there's a supplement called Wobenzym that I take, which is pancreatin/trypsin/chemotrypson, plus bromelain, rutin and papain. There are other similar brands, too... I don't know why ppl don't just take that vs creon...