Yes, I mentioned that
in my first post:
My reason for starting this thread was to ask why more patients on this forum talk about POTS than NMH (aka, NCS = Neurocardiogenic Syncope, Vasovagal Syncope and other names). I had a couple of guesses about why:
1) Maybe POTS is more common in people with ME/CFS?
(either alone or with the huge drop in blood pressure)
2) Maybe POTS is easier to diagnose?
Perhaps both of those guesses are wrong and there's some other reason. But it is interesting that more people on this forum seem to talk about POTS, or use just the umbrella term OI. I don't see very many people talking about NMH or NCS.
On the other hand, I have not done a formal count or anything. So it's also possible that my impression is wrong about more people talking about POTS. Maybe I'm just not reading the threads where folks have talked about NMH .
I do understand that patients can have either an extreme drop in blood pressure, or an increase in heart rate, or both. But I'm not sure I agree with a simple statement that each affects only one part of the autonomic system. I think there's more interconnection between these two symptoms.
Well, I typically do not like to guess, that is why I cut and paste what the research says. If I had to guess, I would say that doctors see the POTS and make a decision for one reason or another not to run a ttt.
It seems to me the difference in the two is the source of the problem. So, perhaps, and again just guessing here, the doctors feel that it is all OI , so the treatment plan would be similar, and feel there is no need to run a test when the increase in heart rate is enough to confirm POTS. Also, I had a horrible relapse after my ttt. Perhaps, they do not want to put people through that.
I know that now they try to counter the effects so the relapse is not as bad .
What I am saying is that my guess is many of the POTS patients probably have NMH, but have not been tested for one reason or another.