sunshine44
Que sera sera
- Messages
- 1,166
So, I have been dealing with a bad case of POTS for a few years now.
Have tried many things. Drs are unwilling to help in most ways despite seeing some of the best cardiologists in my area.
My hormones are obviously waaaay off and cortisol etc. after so many years of this.
I awak almost daily for past year really but daily for month in these awful episodes in middle of night with pounding heart, weakness, blurry vision, cold sweats, horrible temperature feelings and can hardly sit up to get in wheelchair for restroom, also causes horrible mental anxiety etc.
These are NOT panic attacks, I have those and know what those are.
I am dealing with mast cell and can't try a bunch of supplements and meds so please understand that if you try suggesting something.
Question is....am I going to survive this? Who has had so many bad episodes and was able to survive? after over a year of this...I am really scared because there has been no easy solution to get these under control despite trying many things.
I am working on balancing my body and hormones but as many of you know easier said than done....I just cannot believe these episodes I have, there are straight up out of nightmares and I am doing my best to remain calm about it all and wondering if anyone else ever went through really tough times with POTS and made it through.
PS. I Have been bedridden since early last year.
pps. Please no fear posts. I really need to get my mind OUT of fear from these.
Have tried many things. Drs are unwilling to help in most ways despite seeing some of the best cardiologists in my area.
My hormones are obviously waaaay off and cortisol etc. after so many years of this.
I awak almost daily for past year really but daily for month in these awful episodes in middle of night with pounding heart, weakness, blurry vision, cold sweats, horrible temperature feelings and can hardly sit up to get in wheelchair for restroom, also causes horrible mental anxiety etc.
These are NOT panic attacks, I have those and know what those are.
I am dealing with mast cell and can't try a bunch of supplements and meds so please understand that if you try suggesting something.
Question is....am I going to survive this? Who has had so many bad episodes and was able to survive? after over a year of this...I am really scared because there has been no easy solution to get these under control despite trying many things.
I am working on balancing my body and hormones but as many of you know easier said than done....I just cannot believe these episodes I have, there are straight up out of nightmares and I am doing my best to remain calm about it all and wondering if anyone else ever went through really tough times with POTS and made it through.
PS. I Have been bedridden since early last year.
pps. Please no fear posts. I really need to get my mind OUT of fear from these.