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Hi all,
I've posted one or two threads on this forum previously about individual symptoms I've been struggling with as through my search for answers I always ended up on this site. I was under the suspicion I may have CFS but never really wanted to accept it as a possibility and had always hoped to find some sort of hormonal / blood / deficiency type issue that could be resolved. So far that hasn't happened.
Unfortunately the fatigue I'm now experiencing, at times has become extreme and scary and I'm somewhat convinced I have CFS or something very similar.
I've had fatigue for years but not anywhere near this level. I could still do some exercise here and there and live a somewhat limited yet relatively normal life. My main symptom for the past 5 years has been dehydration, frequent urination, dry mouth, which was thought to be Diabetes Insipidus and tests showed I may have a mild/partial form of this condition, yet the replacement hormone didn't help and it didn't quite stack up that this was the condition causing my symptoms. Now 5 years on since the specific dehydration symptoms began, over the past year and specifically the past few months and weeks, the extreme fatigue has really hit me.
I've been trying to still get out once a day for a walk or to shop for food but on recent attempts I've felt like I'm on the verge of collapse. I stopped midway through shopping yesterday and got out of the shop back to the car and felt as though I could barely move my limbs or keep my system going. I had to just sit in the car for about an hour before I even felt I had the energy or courage to make it out of the car to walk the short steps to my front door. It's quite frightening and anxiety provoking feeling so weak after being fit and active for most of life.
I manage to get a decent amount of hours sleep thankfully but wake up still feeling completely drained and weak. If I stay resting in bed for a few hours I may have a bit of energy to get up and do something small in the late afternoon/early evening, before returning to bed.
The reason for my post is, things seem to have escalated recently in terms of the fatigue and where possible I want to do what's best to stop things getting even worse and obviously long term work towards getting better.
Should I just rest as much as possible right now? Would that be best? Or should I be pushing myself to get up and do something during the day if possible?
On the odd day here and there I do feel able to go for a walk. But even if I feel ok for a few hours, out of nowhere this extreme depleted type fatigue can just hit me where just laying in bed even feels like the body is struggling.
Like most others here I've had almost every medical test you can imagine and have found no answers. I'm due to see Rheumatology re possible autoimmune issues in January although I don't suspect this will throw up anything, and I think this will probably be the last NHS avenue I'm sent down before they look at diagnosing CFS.
Sorry for such a long post. I'm just looking for wisdom from you guys as to what's best to do short term in such an escalation of symptom's/worsening of the condition.
P.S I'm male, 33, of normal/healthy weight.
I've posted one or two threads on this forum previously about individual symptoms I've been struggling with as through my search for answers I always ended up on this site. I was under the suspicion I may have CFS but never really wanted to accept it as a possibility and had always hoped to find some sort of hormonal / blood / deficiency type issue that could be resolved. So far that hasn't happened.
Unfortunately the fatigue I'm now experiencing, at times has become extreme and scary and I'm somewhat convinced I have CFS or something very similar.
I've had fatigue for years but not anywhere near this level. I could still do some exercise here and there and live a somewhat limited yet relatively normal life. My main symptom for the past 5 years has been dehydration, frequent urination, dry mouth, which was thought to be Diabetes Insipidus and tests showed I may have a mild/partial form of this condition, yet the replacement hormone didn't help and it didn't quite stack up that this was the condition causing my symptoms. Now 5 years on since the specific dehydration symptoms began, over the past year and specifically the past few months and weeks, the extreme fatigue has really hit me.
I've been trying to still get out once a day for a walk or to shop for food but on recent attempts I've felt like I'm on the verge of collapse. I stopped midway through shopping yesterday and got out of the shop back to the car and felt as though I could barely move my limbs or keep my system going. I had to just sit in the car for about an hour before I even felt I had the energy or courage to make it out of the car to walk the short steps to my front door. It's quite frightening and anxiety provoking feeling so weak after being fit and active for most of life.
I manage to get a decent amount of hours sleep thankfully but wake up still feeling completely drained and weak. If I stay resting in bed for a few hours I may have a bit of energy to get up and do something small in the late afternoon/early evening, before returning to bed.
The reason for my post is, things seem to have escalated recently in terms of the fatigue and where possible I want to do what's best to stop things getting even worse and obviously long term work towards getting better.
Should I just rest as much as possible right now? Would that be best? Or should I be pushing myself to get up and do something during the day if possible?
On the odd day here and there I do feel able to go for a walk. But even if I feel ok for a few hours, out of nowhere this extreme depleted type fatigue can just hit me where just laying in bed even feels like the body is struggling.
Like most others here I've had almost every medical test you can imagine and have found no answers. I'm due to see Rheumatology re possible autoimmune issues in January although I don't suspect this will throw up anything, and I think this will probably be the last NHS avenue I'm sent down before they look at diagnosing CFS.
Sorry for such a long post. I'm just looking for wisdom from you guys as to what's best to do short term in such an escalation of symptom's/worsening of the condition.
P.S I'm male, 33, of normal/healthy weight.