littlebird6180
Senior Member
- Messages
- 119
I have a very close friend who recently got to be evaluated by my ME doctor. She finally got all her test results and the doctor reviewed them with her today and told her that she has a lot of auto-immune markers outside of what she thinks is ME. She said she thinks she has Lupus and that she should see a rheumatologist.
My friend is too anxious to read about Lupus and is feeling really overwhelmed by the information - she has two really young kids. Most of her symptoms are extreme food intolerances, fatigue, joint/muscle aches and she developed in the last year an allergy to cold temperatures.
I'm wondering a few things for her: is there a way to definitively diagnose lupus? could the doctor be wrong? is it something she can genetically pass on to her kids? is there a good support group like PR for it? and is Lupus like ME in that it's hard to find a doctor that really understands it and is knowledgeable about it and doesn't take an old school approach -- or is the treatment fairly standardized?
My friend is too anxious to read about Lupus and is feeling really overwhelmed by the information - she has two really young kids. Most of her symptoms are extreme food intolerances, fatigue, joint/muscle aches and she developed in the last year an allergy to cold temperatures.
I'm wondering a few things for her: is there a way to definitively diagnose lupus? could the doctor be wrong? is it something she can genetically pass on to her kids? is there a good support group like PR for it? and is Lupus like ME in that it's hard to find a doctor that really understands it and is knowledgeable about it and doesn't take an old school approach -- or is the treatment fairly standardized?