What kind of research will they do based on a criteria that doesn't even take into account neuro endocrine and immune problems? They will do research in fatigue and sleep?
SEID is a clinical definition, not a research definition. The simplest diagnositic criteria are just the beginning. There follows a lot of discussion about the details of the condition which can be taken into consideration in research environments.
In any case, no one says that just because the illness is defined by PEM that all that can be studied is PEM. The report discusses many details that suggest research directions in areas of neuro, endocrine, and immune dysfunction. Researchers in those areas will be looking for those research topics. Every researcher is eagerly searching for fresh new ground in their specialty area. The IOM report has given them that.
SEID, via PEM, simply identifies a group of patients with a unique characteristic we all recognize. SEID is not deconditioning, or MDD, or hypothyroid, or burn-out or many of the other things that came under the CFS definition. We need researchers to investigate all the vast array of symptoms associated with the condition defined by SEID. That is clear in the report, as far as I've read to date. Maybe SEID will bring in more patients than we've previously identified, but if they have PEM, then they're welcome into our general research cohorts as far as I'm concerned.