and don't you get a bit....whatstheword that after your perhaps perfect explanation she goes to her computer, googles cfs and reads "all in the mind"?
This is exactly why I rarely use the term CFS. Lay people don't comprehend the term "syndrome", and it would appear that the Google universe doesn't either.
I use terms like "mitochondrial failure", "dysautonomia", "daily migraines", etc.
… and I try really hard to remember that just because someone asks doesn't mean they deserve an answer. Because I've fought so long and hard for diagnosis and treatment, I feel the need to explain and justify. Sometimes, fewer words have a lot more power - after all, don't most liars concoct rambling elaborate stories?
@
Dr.Patient I, too, am having trouble with the the poll. Because I don't understand it's purpose or goal, my motivation to participate is low. Also, the format requires working memory, of which I have nil. Unfortunately, both of those realities of my ME/CFS severely limit me with this type of task. I do look forward to a different version, however!
