• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

Please watch tomorrow : US CFSAC live online! - 5/10 and 5/11

Hope123

Senior Member
Messages
1,266
The US federal CFS Advisory Committee will be holding their annual Spring meeting tomorrow 5/10 and Wednesday 5/11 from 9AM to 5PM EST. The meetings are broadcasted live online. See the right-hand column on the link below to find out how to watch!

http://www.hhs.gov/advcomcfs/

Agenda: http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac20110510_agenda.html

WHY should you watch? You get to hear directly from the CDC, NIH, Social Security, Medicare, FDA, etc. about their views on CFS. Their views affect how your doctors treat you, how much research funding CFS gets, whether you get or continue to get Social Security, what Medicare will or won't cover for CFS care, etc. In addition, Day 2 of this meeting talks about ERISA and long-term disability insurance.

Furthermore, just by the act of watching, you send a message to Washington that people care about CFS. The US gov't counts number of views and this is how they get a sense of US interest in CFS. Realize that the last CFSAC meeting got over 900+ views and this is why the meetings continued to be broadcasted.

Can't watch the whole thing? Watch for a few minutes.
Can't watch tomorrow but you are on the computer? Let it run in the background.
Can't watch tomorrow at all? See the archived versions later on. We'll remind you when it's posted.

THANKS!

[OK to re-post]