Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hi @erin , welcome to the forums. i understand about other people not understanding. Many if not most of us here have had this happening. Do you figure that you never had chicken pox in your life?Hi everyone, my first message here. I am not a native English speaker, apologies in advance for the mistakes.
I had chicken pox 2004 age 34. My life has not been the same after that day.
I had several flu like attacks shortly after a very heavy and long chicken pox episode. Within a year I could not function the way I could and I had to go part time at work. My GP had lots of tests, she told me all the results were normal, but she added that I looked so sick and she could clearly see that something was not right. She did mention m. e., she also said there was no cure and diagnosis was very difficult. She asked if I wanted to be referred to any alternative route. I had homeopathic treatment in the past and I asked to be referred to the Homeopathic Hospital.
Homeopathic treatment was useful to manage my condition at first. But I begin to have severe lapses and homeopathic medicine was not somehow enough to give any relief. My initial symptoms were mostly frequent infections, vertigo, numbness of the limbs and unusual fatigue now begin to shift to a heart condition type of symptoms. Homeopathic specialist also sent me for brain mri and a leg emg, ms was ruled out.
Eventually, I developed severe tachycardia, ibs symptoms, B12 deficiency, Hashimoto's thyroiditis and recently herniated discs on my neck.
I am finding very difficult to cope and I don't know what to do with myself. On top of all, I feel very upset people's comments about my condition. Or actually their inability to see and understand that there is a condition making me ill. I have trained my self so hard not to affected by them but still, I'm not completely immune to these kind of comments. I feel that I'm run out of patience.
I believe I am a classic m. e. case. Concluding my story, I have been on beta blockers for the last 3 years and B12 injections every 3 months since a year and a half. I try not to take any other medication. Though recent herniated disc episode I had to take loads of anti-inflammatory injections and pills, muscle relaxant pills and a cortisone injection. I must admit, to my surprise I have benefited from these medications. I don't know how long will this last. I feel the effect is slowly wearing down.