Petition: Opposing MEGA
- Thread starter AndyPR
- Start date
Just browsing the #IIMEC12 Twitter feed...
I wonder if it could be worth asking the MRC is they were aware of the problems with Crawley's work, and her ability to assess the work of others. This new info made me think this could affect how they responded to an application from MEGA: http://forums.phoenixrising.me/inde...tion-as-from-a-strong-team.51911/#post-858085
>We vote 'no confidence' in MEGA research for M.E.
>A closer look at the MEGA petition reveals that key members and advisors of MEGA are involved in the discredited PACE trial, and the MAGENTA trial in children with ME/CFS which follows from the PACE trial, run by leaders of the bio-psycho-social (BPS) movement known collectively as 'The Wessely School'.
In addition
https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
3,241 signatures
>A closer look at the MEGA petition reveals that key members and advisors of MEGA are involved in the discredited PACE trial, and the MAGENTA trial in children with ME/CFS which follows from the PACE trial, run by leaders of the bio-psycho-social (BPS) movement known collectively as 'The Wessely School'.
In addition
- They are still not including serious ill ME patients (they might be included in the request for funding after next), and will only be determining their definition of PEM after they've secured funding.
- The Patient Advisory Group has been shown to be nothing but lip-service to the concept of including patient input.
- The ME "expert" is still Esther Crawley, who now gives lectures on how to deal with "anti-science" patients, with this petition as a main piece of "evidence", and on how to deny data release.
https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
3,241 signatures
Trial by Error, Continued: My Letter to the University of Bristol
14 JUNE 2017
By David Tuller, DrPH
http://www.virology.ws/2017/06/14/trial-by-error-continued-my-letter-to-the-university-of-bristol/
14 JUNE 2017
By David Tuller, DrPH
http://www.virology.ws/2017/06/14/trial-by-error-continued-my-letter-to-the-university-of-bristol/
@Esther12 I agree that PR members should have contact with the MRC on MEGA & related matters.
The advocacy groups have had a positive impact on Francis Collins, Head of the NiH, in the US.
Anybody: who is the Head of the MRC?
What is their background?
The advocacy groups have had a positive impact on Francis Collins, Head of the NiH, in the US.
Anybody: who is the Head of the MRC?
What is their background?
This is the response from David Marks, editor of the Journal of Health Psychology, to George Davey-Smith's resignation from the editorial board which, apparently, is due to GD-S belief that the recent PACE critiques are "anti-science". Now where have we heard that idea before, that any criticism of any work by the BPS cult is anti-science?? So if anybody was hoping the involvement of GD-S in MEGA would guarantee rigorous scientific standards in anything MEGA does then you might need to rethink that idea.
Sign the petition here https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
Sign the petition here https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
This thread is now 90 pages long! (Apologies if the questions below have already been answered)
*Has any individual or organisation contacted the MRC about concerns with the MEGA application to the MRC Tissue programme?
*Any news emerging about the MEGA application?
*Has any individual or organisation contacted the MRC about concerns with the MEGA application to the MRC Tissue programme?
*Any news emerging about the MEGA application?
That was my thought too. While being opposed on balance, I was conflicated on MEGA, but it's become completely clear that MEGA is a project that will be used against patients to try to reinforce the positions of people like Crawley and undermine their critics.
Last edited:
>We vote 'no confidence' in MEGA research for M.E.
>A closer look at the MEGA petition reveals that key members and advisors of MEGA are involved in the discredited PACE trial, and the MAGENTA trial in children with ME/CFS which follows from the PACE trial, run by leaders of the bio-psycho-social (BPS) movement known collectively as 'The Wessely School'.
In addition
https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
3,242 signatures
>A closer look at the MEGA petition reveals that key members and advisors of MEGA are involved in the discredited PACE trial, and the MAGENTA trial in children with ME/CFS which follows from the PACE trial, run by leaders of the bio-psycho-social (BPS) movement known collectively as 'The Wessely School'.
In addition
- They are still not including serious ill ME patients (they might be included in the request for funding after next), and will only be determining their definition of PEM after they've secured funding.
- The Patient Advisory Group has been shown to be nothing but lip-service to the concept of including patient input.
- The ME "expert" is still Esther Crawley, who now gives lectures on how to deal with "anti-science" patients, with this petition as a main piece of "evidence", and on how to deny data release.
- George Davey-Smith, the "heavyweight scientist" in MEGA has resigned from the editorial board of the Journal of Health Psychology due to the publication of "anti-science" articles that criticise PACE.
https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
3,242 signatures
And from the petition covering letter: https://www.change.org/p/opposing-m...idence-in-mega-research-for-me-cfs/u/19240607
There's a separate thread on this news, but sharing here as Dr. Nigel Speight supported Opposing MEGA.
https://opposingmega.wordpress.com/2016/10/28/dr-nigel-speight-signs-opposing-mega/
https://opposingmega.wordpress.com/2016/10/28/dr-nigel-speight-signs-opposing-mega/
- Messages
- 147
- Likes
- 755
This is really great news. Thanks for sharing it, I'd not have known.
You're welcome @batteredoldbook.
I wonder how much tax-payer money it cost to investigate this vexatious complaint.
The 2011 complaint against CMRC/MEGA Esther Crawley for research conduct is referenced in the NICE CG53 surveillance consultation document (GMC hadn't addressed all the matters raised, seemingly only those they felt could be rejected, and confused the issue by merging their responses to two separate complainants).
Glad they made the right decision eventually in the case of Dr. Speight though.
The 2011 complaint against CMRC/MEGA Esther Crawley for research conduct is referenced in the NICE CG53 surveillance consultation document (GMC hadn't addressed all the matters raised, seemingly only those they felt could be rejected, and confused the issue by merging their responses to two separate complainants).
Glad they made the right decision eventually in the case of Dr. Speight though.
From this post elsewhere http://forums.phoenixrising.me/inde...conflict-of-interest.52479/page-6#post-876922
George Davey-Smith, the "heavyweight" scientist in MEGA showing his biases again.
Sign the petition here --> https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
3,273 people have signed already.
George Davey-Smith, the "heavyweight" scientist in MEGA showing his biases again.
Sign the petition here --> https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
3,273 people have signed already.
- Messages
- 147
- Likes
- 755
Am sorry to see Prof Coyne's words used to support opposition to MEGA. The man called me assh*le as I stood up to him for the way he treated people with M.E.