Snowdrop
Rebel without a biscuit
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Yes, that looks more like it.
I guess it might be this one. They have said the first stage will be to set up the Biobank.
Biomedical Resource and Technology Development Grants
These grants are for researchers who want to establish or maintain resources or technology for the benefit of the wider scientific community.
https://wellcome.ac.uk/funding/biomedical-resource-and-technology-development-grants
Deadline 13th January
It occurs to me that the existing ME Biobank could put in a competing application to expand it's own patient numbers.
MEGA's Prof. Chris P Ponting confirms he thinks Pace Trial is bad science on Twitter today.
Chris Ponting has always seemed like a decent person, engaging fairly with patients. Must be a bit of a bizarre situation for him!
Need to follow that up with the question;MEGA's Prof. Chris P Ponting confirms he thinks Pace Trial is bad science on Twitter today.
James David Chapman @batteredoldbook
@CGATist I'm looking for dialogue and I'm asking you straight: do you think the PACE trial is an example of bad science?
Chris P Ponting @CGATist
Hi. I answered this in previous tweet: it is. Its issues are well-documented including by pwme @batteredoldbook
Need to follow that up with the question;
"So,what do you think about Esther Crawleys comment that PACE was a great,great trial"?
Need to follow that up with the question;
"So,what do you think about Esther Crawleys comment that PACE was a great,great trial"?
One could add a further question about whether he's looked at any of Crawley's own research. But I think it may be unfair to ask a busy biomedical scientist to dig into the murky world of PACE, FITNET etc. He probably has better things to do with his time - much as we might like him to join in our campaigns. On the other hand he has signed up to join in a study that looks like it's going to be run by Crawley, so he might want to know what company he's keeping.
Exactly my thoughts about any of the 'unwary' scientists assembled by Stephen Holgate for this enterprise. Are they aware the data they provide could be used (or misused) by those managing both the study and the media?On the other hand he has signed up to join in a study that looks like it's going to be run by Crawley, so he might want to know what company he's keeping. Can someone perhaps point him in the direction of David Tuller's latest artices about FITNET.
Exactly my thoughts about any of the 'unwary' scientists assembled by Stephen Holgate for this enterprise. Are they aware the data they provide could be used (or misused) by those managing both the study and the media?
@CGATist I'm wondering how MEGA team can function when yourself &Prof Crawley hold opposing views on what makes good scientific methodology?
I think that it is important that we talk to the scientists, but baiting them on twitter like this ? Don't think that is going to be very productive at all.
I think that it is important that we talk to the scientists, but baiting them on twitter like this ? Don't think that is going to be very productive at all.
Sadly loyalty within medicine and medical science does keep issues that need light away from it. I yet don't know how to address this other than by saying I don't think researchers do each other or patients any true favours by leaving the contradictions in their behaviour unaddressed.
The MEGA state of affairs so far might be funny if it didn’t have such serious implications; particularly for children and young people, and future generations of people afflicted by a serious and life-threatening disease through no fault of their own; as the MEGA study would run for years to come and cost several millions of pounds. The question why MEGA had not set up a website was posed on a threadon Phoenix Rising forum about the Opposing MEGA petition. A contributor to the discussion kindly referred to our Opposing MEGA site as an example of how easily and quickly it may be done. The M.E./CFS Epidemiology and Genomics Alliance (MEGA) closed their petition to ‘mainstream research funders’ after 35 days on the evening of 2nd November 2016 stating..