Petition: Appeal to NICE concerning the Guideline Committee for ME/CFS

[Sasha]

A serious and well-written petition, already with about 1,500 signatures in less than 24 hours, calling on NICE not to stuff its committee for the review of ME/CFS guidelines with GET/CBT proponents:

https://www.change.org/p/sir-andrew...ommittee-for-me-cfs-is-transparently-unbiased

 

[Seven7]

And that is how Is done!!!!!

 

[Sasha]

Over 2,000 signatures now. Please sign if you haven't already!

 

[Skycloud]

The influence of the NICE guidelines has an international reach with many other countries either basing their own guidelines on NICE or adopting it wholesale.

GET and CBT are no longer recommended by the NIH in the USA; let's knock down another pillar!

 

[andyguitar]

Well in my humble opinion the new Nice guidelines may contain some suprises ie GET and CBT get the boot.

 

[Skycloud]

Well in my humble opinion the new Nice guidelines may contain some suprises ie GET and CBT get the boot.

I hope you are right; we are in with a chance of achieving this. However, the arguments against PACE aren't fully accepted yet in the UK and there will be an incentive to retain GET and CBT in some form given the investment in specialist clinics so far, paltry as it is; and the philosophy behind them.

It will also go against the grain for the committee to recommend only symptomatic treatment and robust differential diagnosis. There isn't yet a sufficient evidence base to recommend other treatments in the national guidelines. Offering 'nothing' will go against the grain. It is very possible that CBT and GET will be retained with some sort of advisory note. Not quite getting the boot.

The makeup of the committee is important.

To those who haven't yet, please sign.

 

[andyguitar]

But dont forget it's going to be a long process before the new guidelines are published. A lot can happen in the 2 or so years it will take.

 

[Skycloud]

A lot can happen in the 2 or so years it will take.

Yes; I'm looking forward to some new research being published!

 

[andyguitar]

You got it @Skycloud. New research. And a fresh start for ME.

 

[AlwaysTired]

Signed. My signature shows I live in the US though

 

[Rosa Amor]

Both me and my dad signed but is it still running. Haven't the committee members already been decided? Wish I'd spotted this earlier...