Hello,
I am a researcher and I live with CFS (approximately 12 years). I typically study the relationship between medicine and society and I recently decided to turn my attention to living with CFS and how our lives become reconstructed in some ways and misunderstood in others. So I can use your help with developing my interview questions, topics, and prompts.
I am wondering what people think of my interview questions and how might you change or add questions. By responding, you are not in the research study, but helping guide the development of the interview. Please feel free to comment and add your questions to this list. Sometimes I provide just prompts for a conversations, sometimes they are statements, and other times they are questions. See below:
Describe the onset of symptoms up to your awareness that it might be CFS/ME
Tell me about how you gained the diagnosis
What would you like people to know about CFS?
Tell me your daily schedule when you are fatigued.
Tell me your daily schedule when you are not fatigued.
During times when you are fatigued how do you manage your illness and daily life?
In what ways have you changed your life since the onset of symptoms
Tell me about your experiences discussing CFS with medical providers.
Tell me about your experiences discussing CFS with mental health providers.
What is your treatment regimen, if any. Please include medications, vitamin supplements, and non-traditional treatment.
I am a researcher and I live with CFS (approximately 12 years). I typically study the relationship between medicine and society and I recently decided to turn my attention to living with CFS and how our lives become reconstructed in some ways and misunderstood in others. So I can use your help with developing my interview questions, topics, and prompts.
I am wondering what people think of my interview questions and how might you change or add questions. By responding, you are not in the research study, but helping guide the development of the interview. Please feel free to comment and add your questions to this list. Sometimes I provide just prompts for a conversations, sometimes they are statements, and other times they are questions. See below:
Describe the onset of symptoms up to your awareness that it might be CFS/ME
Tell me about how you gained the diagnosis
What would you like people to know about CFS?
Tell me your daily schedule when you are fatigued.
Tell me your daily schedule when you are not fatigued.
During times when you are fatigued how do you manage your illness and daily life?
In what ways have you changed your life since the onset of symptoms
Tell me about your experiences discussing CFS with medical providers.
Tell me about your experiences discussing CFS with mental health providers.
What is your treatment regimen, if any. Please include medications, vitamin supplements, and non-traditional treatment.
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