Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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“You see, in here,” she explained, “we treat ME patients as if they’re just the same as any other patients.”
“You see, in here,” she explained, “we treat ME patients as if they’re just the same as any other patients."
http://strangerandstranger.net/buy.htmI've just bought his book on amazon. Enjoying it!
This is brilliant writing. Apart from the main article, further on is the best poetry I've ever seen about ME. Thanks Tom, and thanks to Robert too.
I've just bought his book on amazon. Enjoying it!
I bought it too, and have finished it. Very affecting. *tears*
I hope Robert keeps writing.
... and passive acknowledgement that there is a problem elsewhere, from within the medical system?It is like a perverse sitcom. Bigoted sincerity at the heart of the health system.
You are a brilliant writer, @Robert 1973. I loved everything I read on your web page. You express yourself so elegantly. It's amazing how you manage to cogently express the emotions of suffering without mawkish self pity. (Basically the total opposite to anything I can imagine writing).
I'm off to buy your book.