It reminds me that in the beginning when I didn't know what's going on, ME fatigue felt similar to when I sometimes woke up in the middle of the night and felt that my body was very heavy and difficult to move. It also felt the same when I was meditating before falling asleep. I thought back then that maybe my body operated on slower brain waves which shouldn't happen during daytime, but I think that's not the case here. It may be more related to melatonin, cortisol.
There are these two videos about long covid, red light, mitochondria and melatonin which I find interesting. I can't do too much red light or sunlight though, it makes me tired. So there's some another factor here, but it nicely connects fatigue with light sensitivity, mitochondria and circadian rhytms. I also did copper loading to check if it will help with cytochrome c oxidase and light tolerance, still not a solution.
Long Covid and Fat Metabolism Mitochondrial Dysfunction: Getting Outside Might Be an Answer
Sunlight: Optimize Health and Immunity (Light Therapy and Melatonin)
Yes that's close to the feeling but while still awake with a stronger "brain is shutting down" feeling, I normally don't wake up through the night but in the cases I do it's almost the same heavy feeling and cognitive blunting effect but a bit different.
I have tried meltonin multiple times in the past and it just makes me extremely blunted and drowsy into the next day. Eventually it has even less of an effect and then I'm just left feeling crappy the next day with no benefits. Too much sunlight does make me very tired but I can be out all day in it and not get the same exact benefits profile from it as I do with the red/near infrared combo lamp.
I don't know what is up with all my extreme reactions to energy from light and otherwise but I also have EMF sensitivity so on this topic I'll go into it as I found something today on it, Less severe than I did before I started serrapeptase and RLT ironically but it's still so bad I can't be around wifi in the same room or a room over without getting very sick. I also get very ill when the hard drive use gets to be too much with HDD's and SSD's alike. I can play video games now on a ps5 but I need my EMF cover on it to do so comfortably enough. HDMI input to a monitor even with the radiation shield still makes me deathly ill very quickly so I'm stuck with VGA and VGA adapters. WIFI and larger unshielded screens are my biggest enemies. Typing I try not to do too much of and I really shouldn't be typing this much but here getting this aIl out is more important so I take the blow sometimes with longer posts like this. I have a funny feeling now all of this has to do with something going very wrong at cytochrome C oxidase where it all initially hits and then the downstream mitochondrial dysfunction causes the main cascade of symptoms. On that below I looked up the condition itself to see if anyone cared enough about us to actually do anymore studies on us and actually found a report!
https://www.tandfonline.com/doi/full/10.1080/19420889.2024.2384874#d1e489
- Hypersensitivity to man-made electromagnetic fields (EHS) correlates with immune responsivity to oxidative stress: a case report
Apparently What was primarily found was in this patient there was an increase in antibodies for oxidized Low-Density Lipoprotein. I attached an image of the abnormalities.
"The patient indeed showed a significant deficit in serum levels of cellular antioxidants Vitamin C, beta-Carotene, and Co-enzyme Q as compared to the norm, together with elevated levels of the ROS scavenging enzyme superoxide dismutase (SOD), indicating the presence of excess ROS. The most striking difference was an approximately 40-fold increase in the concentration of antibodies to oxidized Low-Density Lipoprotein (LDLox) (Figure 2). LDLox is a toxic lipid byproduct of oxidative stress which can contribute to atherosclerosis and inflammation at high concentrations. By contrast, the levels of circulating LDLox measured in the bloodstream were not elevated in this patient (Figure 1b, 2). This suggests that increased levels of LDLox, triggering the formation of anti-LDLox antibody, likely occurred only transiently in the patient, or else are localized in particular organs or cell types.
Both possibilities are consistent with the patient’s EHS symptoms. Even a small and localized increase in LDLox induced by EMF exposure, either in the membranes of the vasculature or in other organs, could provoke a rapid and severe immune reaction, consistent with the rapidity, severity, and nonspecific nature of the symptoms."
Like this person no dietary or environmental changes helped besides keeping away from the source. I have nearly the exact same presentation they do. They proved positive for previous infectious agents, I possibly had these but only got tested for lyme much later which I was positive for and started herbals for. I'm not sure what I would come out with on the same test now. It says nothing on mold toxicity but you often see this condition pop up the most in that community which I certainly had from my old home.
Like me too they also got benefits from RLT but it didn't combat the most severe of symptoms (they had a 730 nm wrap and mine is a near infrared combo with a spectrum of 620 ◦ 670 ◦ 760 ◦ 830 nm).
The article here also goes in multiple chemical sensitivity/heavy metal toxicity and how it relates and why it often coexists with these things. From what I'm getting from this they theorize it's from a violent reaction to cellular byproducts. This patient didn't have MCS but history of family heavy metal poisoning from genetic factors interestingly. After chelation the symptoms appeared much later even after the toxicity was taken care of.
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On the videos... Interesting, carnitine supplemented makes me very drowsy and fatigued. It'll be in a more general way, it's not immediate PEM like shut down but I certainly get much more weighed down and mentally foggy with it. That is also in the first vdeo so interesting on the NIR light and melatonin, I wonder if that is what is happening with me and what happens if I go over my limit. On the second I didn't know that blue light was most associated with mood or specifically how lux works along with how even on a cloudy day being out there is much better than just being in a room with the daylight. I'm starting to wonder now if my exposure threshold for RLT is related the oxygen used by cytochrome C oxidase and some ROS generation that gets out of control and takes longer to clear. On that note since the exposure reaction today on the back of the neck for 15 seconds appears to be normal but with more direct effects on my system and that last night into today I wasn't feeling so hot and didn't know the reason until I found yesterday when I used the wifi on my phone quick I forgot to turn it off to my horror (the exposure lasted around an hour after my RLT use when I first got up so it was on during it, though the benefits were still the same anyhow). I wonder if a second exposure for a short time during the afternoon in the case might combat the EHS symptoms though lead to the same other RLT side effects. Only one way to find out!
If it helps and the pattern of side effects from the RLT itself remains the same I wonder if it's increasing an ROS output that's slow to clean up while reducing antibody responses from the EMF radiation. If that's correct the bounce back should be the same time frame as in normal double RLT exposure circumstances too. Good thing I saw these videos and looked into this today or I never would have made these connections or came up with this idea. Apparently how this is mopped up is the generated melatonin and RLT can immediately increase this (my reactions occur at a 15 second minimum so it happens very quickly). I wonder if serrapeptase has an effect on this antibody but I can't find any information on that.
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Second RLT exposure of the day without the accidental wifi train wreck I unknowningly started yesterday evening was had at 1:30 PM here. Looking up enzyme activity upon exposure this can happen in seconds and go on for hours. Things generally really start happening in no surprise that 1-5 minute range (but clearly from experience from far less than this too). Will report back later on what happens.
10:30 PM - So this is interesting, I didn't after the second exposure this time experience a drop in energy so bad I was practically fighting gravity in a chair all night. Later I gave myself a close zap on the forehead area with it and the only thing it did was clear up my senses and make me more relaxed. Not sure what is happening here but next time I use it will be in a couple days at 1 minute on the lower spine as I need to continue what I'm doing here with it and then after that in a couple days 1 minute on the back of my head. Not sure if something suddenly changed for the better and the boost in tolerance happened today or what. As usual RLT continues to be the gift of weirdness that keeps on giving.
