Last few months I've been having very strange neurological symptoms, where I literally will not be able to move. Basically it feels like my body becomes frozen, and trying to move my hands or limbs impossible.
I find it hard to breathe during this, like air won't come in. But I'm not even hyperventilating during this (Like you would in panic attacks), it's like I have no movement at all. Just completely stiff.
It's so scary
I don't know if this is normal for CFS or if I should be worried about something else.
I recently came over something called paraneoplstaic syndrome, but that would mean cancer or something right? I do have the muscle wasting, and even friends have become concerned, but I don't know what is CFS or not.
I don't know what to do anymore.
Two times i´ve experienced a paralysis you are telling about, but in two quit special situations.
1. A friend and I met up with a guy who was used to smoke a lot of pot, which I smoked only quit seldom. It happened that we two had drunken some beer before smoking that pot. As I didn´t like this mixture normaly and therefore wasn´t used to it I needed to lie down and then couldn´t move at all. My thinking was clear, and I thought, if now the house would beginn to burn I would be lost. This was when I was about 18 years old, still without feeling ill which has come when I was 30 years old. But I had a prefatique, or maybe CFS activitylevel 9 or 9.5 or something like that (since I was 4 or 5 years old, I remember now very well).
2. When I was 39 years old, a few month after I ´ve relapsed very strong from a good enough recovery I was invited by russian people. I was not used to drink alcohol regularly but could still take in some of it. After some hours with vodka I felt the time to go, realy better. I still was confident enough to ride bike. But some wood lying on the small street brought me to crash. I was lying on the street and couldn´t move at all despite I felt no harm and was completly clear in my head.
I have two more experiences that matches up with yours, but again only for some time.
3. When my symptoms grew strong again I was unable to lift up heavier things for about nine days. Then I was able to again. I am now recovering not too bad. Last year I tried two times to ride bike for longer distances which I managed, but I got afterwards severe pem. This year not (one longer distance), but I felt during riding sometimes very weak and slack (still I can drink a beer in such a situation and can go on, but not normaly now).
Interpretation:
In my opinion CFS is caused in the brain. I would guess, taking the first two episodes together, that I suffered from suddenly-to-much Dopamine-receptor-stimulations, which would not match up to a row or something like that, indicating that I was on to low dopamine in generel (here I figured out these years that tyrosine is a very good help). Nitric oxide would re-uptake inhibit dopamine which would be in a first step to much and then I think to low, so chaotic.
Dopamine may be involved in the third episode as well, it may be suddenly empty causing some lack of organisation in the extrapyramidal system. Here a dopamine-receptor-stimulating beer helps here as well with its effects on NMDA receptors (alcohol too) and microglia (hops), but with similarity to others I almost can´t tolerate any beer under normal circumstances nowadays.
4. I also know a breathing problem very well. I started (with great enough success so far) a low (or lower) manganese diet. At the beginning I made at some points mistakes and got two times very strong breathing issues. I couldn´t breathe well technically, very devastatingly. What happend was obviously that the manganese induces the microglia to produce nitric oxide in a huge amount influencing all receptor-neuretransmiiter-systems (I gave the literature in a thread.)
I hope this might be a help to judge the situation you ´re in.
