Oxygen Concentrators

[bertiedog]

oh no. i hope it isnt noisy. its the cheapest heaviest one so it might be lol. i should have thought of that and checked. i live in a small con

wonder if i am supposed to use humidifier with it or not. looks like i need distilled water for that...

I use filtered tap water in mine without any problems.

 

[Daffodil]

so i tried the o2 concentrator last night for about an hour or two. didnt feel any better. when i took the cannula out. my right nostril felt funny..burned a little. i hope this helps eventtually or i am out $1000 ...and money is getting tighter by the day!

 

[raghav]

@Daffodil Did the concentrator help you ?

 

[Daffodil]

@raghav its hard to say. there is nothing overt...but it may have. impossible to know. I don't do it regularly as recommended.

sorry cannot be of more help

 

[raghav]

Thanks @Daffodil

 

[Avena]

I don't do it regularly as recommended.

sorry cannot be of more help

Actually, that part of your Comment might be very helpful for anyone thinking about investing in this... I assume that the reason why you don’t use it regulary is that it is too much a hassle as it makes you bound to not move for several hours a day?

That is why I pointed out that I don’t think I would have been using mine much if it was not for me being bedridden (my comment is on page 1 in this thread).

Please take this factor into consideration before spending a huge amount of money on this, @raghav

 

[raghav]

Thanks @Avena I need to lie down once every 2-3 hours for about an hour to get over the exhaustion of just sitting idle. Even this causes a kind of PEM for me. Also after every meal I have to lie down till the digestion process is partly complete. So if it can give me the energy I need to not lie down then it is worth it. I am not able to take up a job because of this. So if I can use the concentrator for an hour in the morning and an hour in the night and if that helps me not being bed bound then I can take up a part time job. Anyway I am planning on trying this on a trial basis at a nearby clinic for an hour or two and see how it goes. So thanks for the reply.

 

[Daffodil]

@Avena well, the tube is pretty long so i could either lay in bed, do some light exercises, maybe do some sewing or whatnot if i felt well enough, but it is mostly the weekly washing of the plastic cup that i use for humidity that gets me....and also i have to pay for my own cannulas and change them every week. this is, of course, no work, but i still cannot bring myself to do it regularly. dont ask me why.....i just have no motivation to do much anymore. i have been fighting this illness for 25 yrs now and am burnt out trying things and also am generally in a foul mood haha

if i had to guess, i would say the o2 helps. i notice that if i am trying to do some low impact exercises, i can do a few more reps if i am breathing in the o2 at the same time

xoxo

 

[raghav]

@Daffodil Do you have to change the cannula every week ?

 

[Daffodil]

Yes....maybe even more often I don't know. Most people's insurance pays for them. Some people wash them and I tried that but I felt weird using it after

 

[raghav]

@bertiedog Do you use the concentrator with a nasal cannula or a mask(ordinary type or one with rebreather) ?

 

[bertiedog]

I use it with a nasal cannula. It's still one of the most helpful things to give me extra energy.

Pam

 

[raghav]

Thanks @bertiedog !

 

[raghav]

How many hours do you use it every day ? Do you use a humidifier ?

 

[bertiedog]

Usually I use it for between 20-30 minutes after breakfast and lunch and then again after walking my dog in the afternoon. The machine automatically has a dehumidifier built in as long as one keeps it topped up once a week.

Pam

 

[raghav]

Thanks Pam